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The Palliative care Outcome Scale (POS) is a resource for palliative care practice, teaching and research. This website has been established by a not-for-profit organisation to help advance measurement in palliative care. Free resources and training are available.
 
The POS measures are a family of tools to measure patients' physical symptoms, psychological, emotional and spiritual, and information and support needs. They are validated instrument that can be used in clinical care, audit, research and training.
 
The POS measures are specifically developed for use among people severely affected by diseases such as cancer, respiratory, heart, renal or liver failure, and neurological diseases.
 
The POS measures are widely used globally including in Europe, Australia, Asia, Africa and America.
 
POS can be downloaded from this website and is available in 11 languages including English.
 
POS-S is an additional module for symptoms. Extended versions are available for patients living with different conditions such as multiple sclerosis, Parkinson’s disease and end-stage renal disease.
 
IPOS is our new measure which incorporates the best of POS, POS-S and APCA African POS.
 
The POS measures are used in different settings, including home, hospital, hospice and, nursing home.
 
MyPOS is a new measure to assess the symptoms and concerns of people affected by myeloma, and is designed to help practice and care during chemotherapy and other treatments, or in advanced disease.
  FAQ              
 
 
More questions - read our FAQ section or .
 
Resources
 
You will have free access to all the POS family resources and be kept up to date with POS developments and opportunities after you register (registration is free and takes only few minutes).
 
Get involved
 
We are always looking for academic and clinical centres interested in translating and validating POS measures in new languages, settings and disease groups. .
 
We also want to hear from professionals using POS measures locally and nationally.
 
  News and Events
 
CSI has a new vacancy for a Research & Dissemination Facilitator- Project BuildCARE, applications close on Monday 1st September 2014.
 
 
Welcome Alice Brown (C-CHANGE Research Assistant) to the POS team.
 
POS has been used as one of the main outcome measures in a Dutch trial evaluating GP communication training
 
CSI has a new vacancy for a Building Capacity Administrative Assistant, applications close on 15th July 2014.
 
A very successful workshop took place at the CSI, in partnership with Help the Hospices, on Data and Outcome Measures. To access the presentations given by the speakers at this workshop please click here, and as well as the training booklet introducing a suite of measures for the Outcome Assessment and Complexity Collaborative (OACC) project.
 
The next POS Outcome Measurement Workshops are scheduled to take place on Thursday 5th and Friday 6th February 2015. More details soon.
 
Welcome to Jana Witt (working as project manager/research associate OACC), Francesca Cooper (Administrator OACC, BuildCARE, CLAHRC and POS) and Anna Bone (research assistant OPTCARE Elderly) on the POS team.
 
First routine use of the African iPOS (integrated POS) in all palliative care services in Ghana. See this summary or the ehospice article.
 
POS is represented at the 8th World Research Congress of the European Palliative Care Association in Lleida, Spain. Liesbeth van Vliet is presenting her work "Development of a Decision Support Tool for Clinical End-users of POS: Findings from a Programme to Enhance Routine Clinical Outcome Tool Implementation". Please come and see us.
 
CSI has a new vacancy to cover maternity leave for a Quality Improvement Facilitator.
 
 
The BuildCARE conference: 'Access, Equity and Innovation in Palliative Care: Can we really afford and deliver quality for all in the future?' took place on Wednesday 7th May 2014.
 
The POS team was at the 10th Palliative Care Congress 12-14th March 2014 in Harrogate, UK.
 
POS-S Renal included in a review of PROM's for people with Chronic Kidney Disease by Oxford University.
 
The Integrated Palliative care Outcome Scale (IPOS) was received with much enthusiasm at the POS training days. Following feedback we are now making final adjustments to the measure. The IPOS will be available to download from this website very soon - watch this space!
 
We welcome the new paper on use of POS in Africa by Defilippi and Downing published in the International Journal of Palliative Nursing More.
 
POS training days were held on the 10th and 11th February 2014. The presentations are available for attendees.
 
An exciting new study to validate the Integrated Palliative care Outcome Scale (IPOS) is now underway. The IPOS integrates the core POS and the symptom module (POS-S). IPOS is a brief tool for global measurement of palliative care concerns, suitable for completion by patients and health care staff in various care settings. This study is led from King’s College Hospital in London by Dr Fliss Murtagh, with several collaborating centres around the country. Parallel translation and validation studies are taking place in Germany, Greece, Portugal, Romania and Sweden. For questions please contact .
 
CSI has new posts for a research associate, an administrator and two palliative care nurses to work on a new Outcome Assessment Complexity Collaborative (OACC) project.
 
Todos os questionários POS e POS-S versão doente e staff estão agora disponíveis on-line/All Portuguese POS and POS-S questionnaires for patient and staff completion are now uploaded on the POS website (POS translations, POS-S translations).
 
The Argentinian questionnaires are now on the web site (POS translations).
 
Professor Irene Higginson, developer of POS, has been elected as a Fellow of the Academy of Medical Sciences. She is one of 44 leading medical experts elected this year. Read More.
 
A new systematic review shows that the POS is the most frequently used PROM in palliative care clinical practice. Implementing Patient Reported Outcome Measures (PROMs) in Palliative Care clinical practice: a systematic review of facilitators and barriers.
 
In June, Dr. Nobuhisa Nakajima (Palliative Care Physician based at the Higashi Sapporo Hospital in Japan) visited the Cicely Saunders Institute. He recently started working with testing and translating the Japanese POS. Read More.
 
Welcome to Liesbeth van Vliet who joined the POS team and is also working on the EURO IMPACT project in which she will be developing more clinical guidance for the use of POS.
 
We say goodbye to Yuen King Ho who is leaving us and will take up a post as analyst at Zalando in Berlin.
 
Thanks to all who came to meet the POS team at the 13th World Congress of the EAPC in Prague (booth 23).
 
Report shows that POS impacts on quality of hospice care in Africa and reaches patients and families in Sub-Saharan Africa. (will open in a new window)
 
Another video on using POS in clinical settings is available on our YouTube channel (will open in a new window)
 
In Namibia, Catholic AIDS Action (CAA) worked with APCA to use POS for setting quality improvement priorities in patient care. It was also used to evaluate the impact on patient and carer outcomes of training and integrating palliative care into home based care. Palliative care has now been integrated into 96 service sites.
 
APCA POS used in a phase III RCT; read the protocol here: http://www.biomedcentral.com/1471-2334/12/288 (will open in a new window)
 
Another short introduction video on POS is available on our YouTube channel (will open in a new window)
 
The final updated programmes for the POS training days are now available on the Courses and workshops page.
 
A short "Introducing POS" video is available on the POS Video page.
 
 
POS training from 18-19 February 2013 is now over.
 
Initial validation of a Brazil version of POS is now close to completion.
 
The POS team is working towards completing the first e-learning module which will be available on this website.
 
The POS team will be developing POS learning resources on 12 November 2012.
 
Meet the POS Team at “In the end, care counts: End of life care conference 2012”, the 16/10/2012 in Westminster, London, SW1P 3NZ. We will have a stand with the Cicely Saunders Institute.
 
POS to be used in a cross-national study involving US, Ireland and UK from November 2012.
 
POS and POS-S are being combined to form a new version called Integrated POS or IPOS.
 
POS featuring in Floriani Foundation website.
 
Welcome to Lesley Henson who has joined the POS team and is also working on the BuildCARE project at the Cicely Saunders Insitute.
 
POS featuring in "best practice BMJ" under comprehensive palliative care assessment. 
 
Website has been “refreshed” hope you like it! More to come. Any ideas on how to improve the website or comments? please contact Peter.
 
Welcome to Mendy Dzingina, Caty Pannel and Danielle Harker who have joined the POS team and are also working on various projects at the Cicely Saunders Institute.
 
Thanks BMJ Journals, for republishing our paper on "POS and STAS which questions are most useful? " in Postgrad Med J.
 
New manual available for download POS Manual for cross cultural adaptation and validation (opens in new window).
 
Welcome to Clare Ellis-Smith who has joined the POS team and is also working on the BuildCARE project.
 
 
More than 1250 registered users on POS website since it was launched in May 2011.
 
POS website highly reviewed (link in Italian).
 
 
National developments in Wales means that I-POS is used routinely throughout the nation.
 
Brazilian POS validated version coming soon / A versão do POS em Português (Brasileiro) será disponibilizada em breve neste site.
 
Bulgarian POS validated version coming soon / Българският превод на POS - Измерване на резултатите от провежданите палиативни грижи - се подготвя и ще бъде на ваше разположение скоро.
 
Guidelines on cross-cultural adaptation and validation of the POS coming soon.
 
POS and STAS which questions are most useful? Higginson et al 2012.
 
Outcomes out of Africa Downing et al 2012.
 
Implementing PROM's in palliative care Bausewein et al 2011.
 
POS training 2011 was a success! Thank you to all participants and speakers.
 
The programmes for the November 2011 training days are available on the courses and workshops page or using the following links. POS clinicians’ training day 14/11/2011 and POS researchers’ training day 15/11/2011 (open in new windows).
 
EAPC Taskforce on patient-reported outcome measurement in palliative care launched May 2011.
 
PRISMA-MoreCARE joint summit on outcome measurement - May 2011.
 
POS website launch at the 12th EAPC congress May 2011.
 
 
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