APCA African POS
Blum D, Selman L, Agupio G, Mashao T, Mmoledi K, Moll T, Dinat N, Gwynther L, Sebuyira LM, Ikin B, Downing J, Kaasa S, Higginson IJ, Harding R. Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa. Health and Quality of Life Outcomes. 2014;12(1):118. Link
Defilippi K, Downing J. Feedback from African palliative care practitioners on the use of the APCA POS. Int J Palliat Nurs. 2013 Dec 20;19(12):577-81. Link
Downing J, Harding R, Powell R, Alexandra C, Cameron S, Connor S, Defilippi K, Garanganga E, Kikule E, Mwangi-Powell F. Use of the APCA African Palliative Outcome Scale (POS) improves nursing assessment of palliative care patients. European Journal of Palliative Care 2007:EAPC.
Downing J, Ojing M, Powell RA, Ali Z, Marston J, Meiring M, Ssengooba J, Williams S, Mwangi-Powell F, Harding R. A palliative care outcome measure for children in sub-Saharan Africa: Early development findings. European Journal of Palliative Care 2012; 19(6):292-4.
Downing J, Simon ST, Mwangi-Powell FN, Benalia H, Daveson BA, Higginson IJ, Harding R, Bausewein C; Project PRISMA. Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa. BMC Palliat Care. 2012 Jan 6;11:1. doi: 10.1186/1472-684X-11-1. Link
Gwyther L, Harding R, Selman L, Mashao T, Dinat N, Mpanga-Sebuyira L, Mmoledi K, Agupio G, Gillespie C, Panatovic B. Symptom prevalence and factors associated with burden indices among palliative care patients: a multicentre study in 2 Sub-Saharan African countries. European Journal of Palliative Care 2007:EAPC.
Harding R, Albertyn R, Sherr L, Gwyther L. Pediatric Palliative Care in Sub-Saharan Africa: A Systematic Review of the Evidence for Care Models, Interventions, and Outcomes. J Pain Symptom Manage 2014 Mar;47(3):642-51. doi: 10.1016/j.jpainsymman.2013.04.010. Epub 2013 Aug 21. Link
Harding R, Dinat N, Mpanga Sebuyira L. Measuring and improving palliative care in South Africa: multiprofessional clinical perspectives on development and application of appropriate outcome tools. Progress in Palliative Care 2007; 15:55-59.
Harding R, Dinat N, MPanga Sebuyira. Measuring and improving palliative care in South Africa: multiprofessional clinical perspectives on development and application of appropriate outcome tools. Progress in Palliative Care 2007; 15:55-59.
Harding R, Panatovic B, Agupio G, Gillespie C, Mashao T, Mmoledi K, Ndlovu P, Dinat N, Gwyther L, Mpanga-Seburia L. Measuring pain and symptoms in resource-poor settings: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa. European Journal of Palliative Care 2007:EAPC.
Harding R, Powell RA, Namisango E, Merriman A, Gikaara N, Ali Z, Higginson IJ. Palliative care-related self-report problems among cancer patients in East Africa: a two-country study. Support Care Cancer. 2014 Dec;22(12):3185-92. doi: 10.1007/s00520-014-2301-5.Link
Harding R, Selman L, Aguipo G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Panjatovic B, Higginson IJ. Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. Health Qual Life Outcomes 2010;8(10). Link
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gao W, Gwyther L, Mashao T, Mmoledi K, Moll A, Mpanga Sebuyira L, Ikin B, Higginson I. Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa. BMJ Sexually Transmitted Infections. 2012. 88(8):607-11. Link
Harding R, Selman L, Ali Z, Powell RA, Namisango E, Mwangi-Powell F, et al. Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures. Health and Quality of Life Outcomes 2014;12(1):80 doi:10.1186/1477-7525-12-80. Link
Harding R, Selman L, Simms VM, Penfold S, Agupio G, Dinat N, Downing J, Gwyther L, Ikin B, Mashao T, Mmoledi K, Sebuyira LM, Moll T, Mwangi-Powell F, Namisango E, Powell RA, Walkey FH, Higginson IJ, Siegert RJ. How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS. J Pain Symptom Manage. 2013 Apr;45(4):746-52. doi: 10.1016/j.jpainsymman.2012.04.007. Epub 2012 Sep 24. Link
Harding R, Simms V, Penfold S, McCrone P, Moreland S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Fayers P, Curtis S, Higginson IJ. Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: Study protocol. BMC Public Health. 2010. 10:584. Link
Ho YX, Morse RS, Lambden K, Mushi BP, Ngoma M, Mahuna H, Ngoma T, Miesfeldt S. How a Digital Case Management Platform Affects Community-Based Palliative Care of Sub-Saharan African Cancer Patients: Clinician-Users' Perspectives. Appl Clin Inform. 2022 Oct;13(5):1092-1099. doi: 10.1055/s-0042-1758223. Epub 2022 Nov 16. PMID: 36384234; PMCID: PMC9668489. Link
Lentsoane, Pearl P; Meyer, Hannelie; Schellack, Natalie "The use of outcome measures and pain scales in palliative care and clinical practice" S Afr Pharm J 2014;81(8):28-31.
Lentsoane, Pearl P; Meyer, Johanna C; Schellack, Natalie; Cameron, David A. "Challenges in the provision of palliative care at resource-limited South African hospice settings" African Journal for Physical, Health Education, Recreation and Dance. Supplement 1:2 (September) 2014, pp 420-432. Link
Lowther K, Harding R, Ahmed A, Gikaara N, Ali Z, Kariuki H, Sherr L, Simms V, Selman L. Conducting experimental research in marginalised populations: clinical and methodological implications from a mixed-methods randomised controlled trial in Kenya. AIDS Care. 2016 Feb 26:1-4. [Epub ahead of print] Link
Lowther K, Selman L, Simms V, Gikaara N ,Ahmed A , Ali Z, Kariuki H, Sherr L, Higginson, IJ, Harding R. Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial. The Lancet HIV 2015. doi:10.1016/S2352-3018(15)00111-3. Link
Powell RA, Downing J, Harding R, Mwangi-Powell F, Connor S. Development of the APCA African Palliative Outcome Scale. J Pain & Symptom Manage 2007;33(2):229-232. Link
Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, Higginson IJ, Harding R. 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study. Health Qual Life Outcomes. 2013 Jun 10;11:94. doi: 10.1186/1477-7525-11-94. Link