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Implementation, Training and Audit
Antunes B, Ferreira PL, Harding R, Higginson IJ. Development of a Clinical Aid for Routine Assessment of Symptoms and Multidimensional Outcomes in Palliative Care: Development of the POS/POS-S Score Card. EAPC Scientific Congress, Lisbon, Portugal. European Journal of Palliative Care 2011; P555.
Antunes B, Harding R, Higginson IJ. Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers. Palliat Med. 2014;28(2):158-75. doi: 10.1177/0269216313491619. Epub 2013 Jun 25. Link
Aspinal F, Higginson IJ. Audit, outcomes and quality of life in palliative care. In: Sykes N, Edmonds P, Wiles J. Management of Advanced Disease London: Arnold Publishers. 2004; pp27-47.
Aspinal F, Hughes R, Higginson I, Chidgey J, Drescher U, Thompson M. A user's guide to the Palliative care Outcome Scale. London: Palliative Care and Policy Publications: 2002.
Bausewein C, Daveson BA, Currow DC, Downing J, Deliens L, Radbruch L, Defilippi K, Lopes Ferreira P, Costantini M, Harding R, Higginson IJ. EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement. Palliat Med. 2016 Jan;30(1):6-22. doi:10.1177/0269216315589898. Epub 2015 Jun 11. Link
Bausewein C, Schildmann E, Rosenbruch J, Haberland B, Tänzler S, Ramsenthaler C. Starting from scratch: implementing outcome measurement in clinical practice. Ann Palliat Med. 2018 Jul 9. pii: apm.2018.06.08. doi: 10.21037/apm.2018.06.08. [Epub ahead of print] Link
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R, Higginson IJ, Prisma. Implementing Patient Reported Outcome Measures (PROMs) in Palliative Care - Users' Cry for Help. Health and Quality of Life Outcomes 2011; 9(1):27. Link
Bausewein C, Simon ST, Benalia H, Daveson B, Harding R,Higinson IJ, on behalf of PRISMA. Experiences with Patient Reported Outcome Measures in Palliative Care - Results from an International Online Survey. EAPC Scientific Congress, Lisbon, Portugal. European Journal of Palliative Care 2011; P551.
Beck I, Törnquist K, Gruvebäck A, Rasmussen BH, Olsson Möller U. Nurses' experiences of using the Integrated Palliative care Outcome Scale with patients in specialized palliative care-A qualitative focus group study. Nurs Open. 2023 Sep 28. doi: 10.1002/nop2.2004. Epub ahead of print. PMID: 37771265. Link
Brennan F, Siva B, Crail S. Appropriate Assessment of Symptom Burden and Provision of Patient Information. Nephrology (Carlton). 2013 Apr 16. doi: 10.1111/nep.12075. [Epub ahead of print] Link
Chidgey JM, Higginson I, Monroe B. The use of the Palliative Care Outcome Scale (POS) in a specialist palliative care unit. Palliative Care Congress, University of Warwick, March 2000. Palliative Medicine 2000; 14:245-246.
Cooper J, Hewison A. Implementing audit in palliative care: an action research approach. J Adv Nurs 2002 Aug;39(4):360-9. Link
Defilippi K, Downing J. Feedback from African palliative care practitioners on the use of the APCA POS. Int J Palliat Nurs. 2013 Dec 20;19(12):577-81. Link
Dunckley M, Aspinal F, Addington-Hall JM, Hughes R, Higginson IJ. A research study to identify facilitators and barriers to outcome measure implementation. Int J Palliat Nurs 2005;11(5):218-25.Link 
Edmonds P, Stuttaford J, Penny J, Lynch AM, Chamberlain J. Use of modified STAS as an evaluation tool for a hospital palliative care team. Proceedings of the European Association for Palliative Care Conference, London. 1997; 43.
Edmonds PM, Stuttaford JM, Penny J, Lynch AM, Chamberlain J. Do hospital palliative care teams improve symptom control? Use of modified STAS as an evaluation tool. Palliative Medicine 1998; 12:345-351.Link 
Etkind SN, Daveson BA, Kwok W, Witt J, Bausewein C, Higginson IJ, Murtagh FEM. Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review. J Pain Symptom Manage. 2015 Mar;49(3):611-24. Link
Farquhar MC, Higginson IJ, Booth S. Repeated measurement of quality of life in palliative care research: the experience of using the SEIQoL-DW in a pilot Phase II RCT of a complex intervention for breathlessness. 7th Palliative Care Congress. Palliative Medicine 2008; 22:596.
Field G B, Chamberlain C, Urch C, Stirling C, Meyer M, Higginson IJ. Evaluation of the Support Team Assessment Schedule for the In-patient Setting - and its Further Development. In: Proceedings of the IV Congress of the European Association for Palliative Care. Edit by Franco de Conno. Milan: European Association of Palliative Care 1997: 99-108.
Guo P, Gao W, Higginson IJ, Harding R. Implementing Outcome Measures in Palliative Care. J Palliat Med. 2018 Apr;21(4):414. doi: 10.1089/jpm.2017.0674. Link
Harding R, Higginson IJ, Leam C, Donaldson N, Pearce A, George R, Robinson V, Taylor L. Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. J Pain Symptom Manage 2004;27:396-408. Link 
Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 1999 Dec;8(4):219-27. Link
Higginson IJ. Audit in Palliative Care – does it work? European Journal of Palliative Care 2005: EAPC.
Higginson IJ. Clinical and organisational audit in palliative care. In Oxford Textbook of Palliative Medicine Second Edition. Edit by D Doyle, G W C Hanks, N MacDonald. Oxford: Oxford University Press 1998; 2 (6):pp67-81.
Higginson IJ. Clinical and organizational audit in palliative medicine. In: Oxford Textbook of Palliative Medicine. Eds: Doyle D, Hanks G, Cherny N, Calman K. Oxford: Oxford University Press. 2004; pp184-196.
Higginson IJ. Needs assessment and audit in palliative care. In: Handbook of Palliative Care. Eds: Faull C, Carter Y, and Woof R. Oxford: Blackwell Science Ltd 1998; pp44-54.
Higginson IJ. Quality assurance and audit in palliative care. In: Chochinov HM, Breitbart W (Eds). Handbook of Psychiatry in Palliative Medicine. Oxford, New York: Oxford University Press Inc. 2000; 399-406.
Higginson IJ, Bruera E. Do we need palliative care audit in developing countries? Palliative Medicine 2002; 16:546-547. Link 
Higginson IJ, Carr A. Measuring quality of life: Using quality of life measures in the clinical setting. British Medical Journal 2001; 322:1297-1300. Link 
Higginson IJ, Carr AJ. The clinical utility of quality of life measures. In: Carr AJ, HIGGINSON IJ, Robinson PG (Eds). Quality of Life. London: BMJ Books 2003, pp63-78.
Higginson IJ, Costantini M. Communication in end-of-life cancer care: a comparison of team assessments in three European countries. Journal of Clinical Oncology 2002; 20:3674-3682. Link 
Higginson IJ, Hart S, Burman R, Silber E, Saleem T, Edmonds P. Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up. BMC Palliat Care 2008;7:7. Link
Higginson IJ, Hart S, Silber E, Burman R, Edmonds P. Symptom prevalence and severity in people severely affected by Multiple Sclerosis. Journal of Palliative Care 2006;22:158-165. Link
Higginson IJ, Hearn J. Palliative Care Audit: Tools, Objectives and Models for Training in Assessment, Monitoring and Review. In: Portenoy RK, Bruera E (Eds). Topics in Palliative Care Vol 4. Oxford, New York: Oxford University Press, Inc 2000; 95-118.
Higginson IJ, McCrone P, Hart SR, Burman R, Silber E, Edmonds PM. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage. 2009 Dec;38(6):816-26. Link
Higginson IJ, Simon ST, Benalia H, Downing J, Daveson BA, Harding R, Bausewein C; PRISMA. Republished: which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey. Postgrad Med J. 2012 Aug;88(1042):451-7. Link
Hogberg C, Alvariza A, Beck I (2019). Patients' experiences of using the Integrated Palliative care Outcome Scale for a person-centered care: A qualitative study in the specialized palliative home-care context. Nurs Inq, e12297. doi:10.1111/nin.12297 Link
Hudson P, Collins A, Bostanci A, Willenberg L, Stephanov N, Phillip J. Toward a systematic approach to assessment and care planning in palliative care: A practical review of clinical tools. Palliative and Supportive Care. 2015 doi:10.1017/S1478951515000565. Link
Hughes R, Aspinal F, Addington-Hall J, Chidgey J, Drescher U, Dunckley M, et al. Professionals' views and experiences of using outcome measures in palliative care. Int J Palliat Nurs 2003 Jun;9(6):234-8. Link
Hughes R, Aspinal F, Addington-Hall JM, Dunckley M, Faull C, Higginson IJ. It just didn't work: the realities of quality assessment in the English health care context. Int J Nurs Stud 2004 Sep;41(7):705-12. Link
Hughes RA, Sinha A, Aspinal F, Dunckley M, Addington-Hall J, Higginson IJ. What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study. Int J Health Care Qual Assur Inc Leadersh Health Serv 2004;17(1):47-52. Link
Kaasa S, Loge JH, Fayers P, Caraceni A, Strasser F, Hjermstad MJ, Higginson I, Radbruch L, Haugen DF. Symptom assessment in palliative care: a need for international collaboration. Journal of Clinical Oncology 2008; 10:3867-3873. Link
Kinley J, Ellis-Smith C, Hurt M, McIvor K, Evans CJ (2019). A collaborative approach in dementia care to improve clinical effectiveness and priorities for research through audit. 25, 588-595. Link
Koffman J, Higginson IJ. Accounts of symptom severity and control during advanced disease: a comparison of first generation black Caribbean and white patients with advanced disease. Pall Med 2001; 15:539-540.
Laila M, Rialle V, Nicolas L, Duguay C, Franco A. Videophones for the delivery of home healthcare in oncology. Stud Health Technol Inform 2008;136:39-44.Link
Lerzynski GA, Allen A, Murray SA. An assessment of the ability of the Palliative Care Outcome Scale (POS) in different forms of care to measure palliative care outcomes in different settings. The use of a palliative care outcome measure in cancer patients attending St Columba's day hospice, Edinburgh, and in patients with lung cancer or heart failure in primary care. Z Palliativmed 2004;5(19):19-27. Link
Lind S, Sandberg J, Brytting T, Fürst CJ, Wallin L. Implementation of the integrated palliative care outcome scale in acute care settings - a feasibility study. Palliat Support Care. 2018 Jan 21:1-8. doi: 10.1017/S1478951517001158. [Epub ahead of print] Link
Lind S, Wallin L, Furst CJ, Beck I. (2019). The integrated palliative care outcome scale for patients with palliative care needs: Factors related to and experiences of the use in acute care settings. Palliat Support Care, 1-8. doi:10.1017/s1478951518001104 [Epub ahead of print] Link
Powell RA, Downing J, Harding R, Mwangi-Powell F, Connor S. Development of the APCA African Palliative Outcome Scale. J Pain Symptom Manage 2010;33(2):229-232. Link
Rosemann T, Hermann K, Miksch A, Engeser P, Szecsenyi J. The PAMINO-project: evaluating a primary care-based educational program to improve the quality of life of palliative patients. BMC Palliat Care 2007;6:5. Link
Sandham M, Hedgecock EA, Siegert R, Narayanan A, Hocaoglu MB, Higginson I. Intelligent Palliative Care Based on Patient-Reported Outcome Measures. J Pain Symptom Manage. 2022 Jan 10:S0885-3924(21)00641-2. doi: 10.1016/j.jpainsymman.2021.11.008. Epub ahead of print. PMID: 35026384. Link
Selman L, Harding R. How can we improve outcomes for patients and families under palliative care? Implementing clinical audit for quality improvement in resource limited settings. Indian journal of palliative care 2010; 16(1):8-15. Link
Simon ST, Higginson IJ, Harding R, Daveson BA, Gysels M, Deliens L, Echteld MA, Radbruch L, Toscani F, Krzyzanowski DM, Costantini M, Downing J, Ferreira PL, Benalia A, Bausewein C, Prisma. Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care. Supportive Care in Cancer 2012; 20(7):1573-8. Link
Slater A, Freeman E. Patients' views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 2004 Jul;10(7):343-51. Link
Slater A, Freeman E. Is the Palliative Care Outcome Scale useful to staff in a day hospice unit? Int J Palliat Nurs 2005 Jul;11(7):346-54. Link
Stevens AM, Gwilliam B, A'hern R, Broadley K, Hardy J. Experience in the use of the palliative care outcome scale. Support Care Cancer 2005 Dec;13(12):1027-34. Link
Tavares AP, Paparelli C, Kishimoto CS, Cortizo SA, Ebina K, Braz MS, Mazutti SR, Arruda MJ, Antunes B. Implementing a patient-centred outcome measure in daily routine in a specialist palliative care inpatient hospital unit: An observational study. Palliat Med. 2017 Mar;31(3):275-282. doi: 10.1177/0269216316655349. Epub 2016 Jul 11. Link
Turner-Stokes L, Williams H, Sephton K, Rose H, Harris S, Thu A. Engaging the hearts and minds of clinicians in outcome measurement - the UK Rehabilitation Outcomes Collaborative approach. Disabil Rehabil 2012; 34(22):1871-9. Link
Van Vliet LM, Harding R, Bausewein C, Payne S, Higginson IJ; EUROIMPACT. How should we manage information needs, family anxiety, depression, and breathlessness for those affected by advanced disease: development of a Clinical Decision Support Tool using a Delphi design. BMC Med. 2015 Oct 13;13(1):263. Link
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