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POS use in research studies
Al Bulushi A, Critchley K. Evaluation of Quality of Life Instruments in a Palliative Care Context: An Integrative Literature Review. Middle East Journal of Nursing Volume 9 Issue 3 2015. Link
Antunes B, Ferreira PL, Harding R, Higginson IJ. Development of a Clinical Aid for Routine Assessment of Symptoms and Multidimensional Outcomes in Palliative Care: Development of the POS/POS-S Score Card. EAPC Scientific Congress, Lisbon, Portugal. European Journal of Palliative Care 2011; P555.
Antunes B, Rodrigues PP, Higginson IJ, Ferreira PL (2020). Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale–a multi-centre study. BMC Palliative Care, 19, 1-9. Link
Bajwah S, Ross JR, Wells AU, Mohammed K, Oyebode C, Birring SS, Patel AS, Koffman J, Higginson IJ, Riley J . Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention. Thorax 2015 Sep;70(9):830-9. doi: 10.1136/thoraxjnl-2014-206583. Epub 2015 Jun 23. Link
*Bausewein C, Le Grice C, Simon ST, Higginson IJ, on behalf of PRISMA. The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS. Palliat Med. 2011 Jun;25(4):304-313. Epub 2011 Apr 4. Link
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R, Higginson IJ, Prisma. Implementing Patient Reported Outcome Measures (PROMs) in Palliative Care - Users' Cry for Help. Health and Quality of Life Outcomes 2011; 9(1):27. Link
Bone AE, Gao W, Gomes B, Sleeman KE, Maddocks M, Wright J, Yi D, Higginson IJ, Evans CJ. Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population-Based Mortality Follow-Back Survey. J Am Geriatr Soc. 2016. doi: 10.1111/jgs.14442 Link
Brandt HE, Deliens L, van der Steen JT, Ooms ME, Ribbe MW, van der Wal G. The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale. Palliat Med 2005 Jun;19(4):334-42. Link
Brennan F, Collett G, Josland EA, Brown MA. The symptoms of patients with CKD stage 5 managed without dialysis. Progress in Palliative Care 2014. Link
Bristowe K, Horsley HL, Shepherd K, Brown H, Carey I, Matthews B, O'Donoghue D, Vinen K, Murtagh FE. Thinking ahead--the need for early Advance Care Planning for people on haemodialysis: A qualitative interview study. Palliat Med. 2015 May;29(5):443-50. Link
Brown MA, Collett GK, Josland EA, Foote C, Li Q, Brennan FP. CKD in Elderly Patients Managed without Dialysis: Survival, Symptoms, and Quality of Life. Clin J Am Soc Nephrol. 2015 Feb 6;10(2):260-8. doi: 10.2215/CJN.03330414. Link
Calanzani N, Higginson IJ, Koffman J, Gomes B. Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care. PLoS One. 2016;11(1):e0146134. Link
Cheikh Hassan HI, Brennan F, Collett G, Josland EA, Brown MA. Efficacy and safety of gabapentin for uremic pruritus and restless legs syndrome in conservatively managed patients with chronic kidney disease. J Pain Symptom Manage. 2015 Apr;49(4):782-9. doi: 10.1016/j.jpainsymman.2014.08.010. Link
Chow AYM, Fordjour GA, Lui JNM, Chan IKN, Zhang AY, Chan CLW. The Physical and Psychosocial Outcomes of a Psychosocial Home-Based end-of-Life Care Intervention in Hong Kong. J Palliat Care. 2023 Feb 15:8258597231157346. doi: 10.1177/08258597231157346. Epub ahead of print. PMID: 36793228. Link
Chua CK, Wu JT, Wong YY, Qu L, Tan YY, Neo PS, Pang GS. Caregiving and Its Resulting Effects-The Care Study to Evaluate the Effects of Caregiving on Caregivers of Patients with Advanced Cancer in Singapore. Cancers (Basel). 2016 Nov 15;8(11). pii: E105. Link
Collins E, Witt J, Bausewein C, Daveson B, Higginson IJ, Murtagh FEM. A Systematic Review of the Use of the Palliative Care Outcome Scale (POS) and the Support Team Assessment Schedule (STAS) in Palliative Care. J Pain Symptom Manage 2015 Dec. doi: 10.1016/j.jpainsymman.2015.07.015. Link
Corner J, Halliday D, Haviland J, Douglas HR, Bath P, Clark D, et al. Exploring nursing outcomes for patients with advanced cancer following intervention by Macmillan specialist palliative care nurses. J Adv Nurs 2003 Mar;41(6):561-74. Link
Costantini M, Higginson IJ, Boni L, Orengo MA, Garrone E, Henriquet F, Bruzzi P. Effect of a palliative home care team on hospital admissions among patients with advanced cancer. Palliative Medicine 2003;17:315-321. Link
Coym A, Ullrich A, Hackspiel LK et al. Systematic symptom and problem assessment at admission to the palliative care ward – perspectives and prognostic impacts. BMC Palliat Care 19, 75 (2020). Link
Davies JM, Gao W, Sleeman KE, Lindsey K, Murtagh FE, Teno JM, Deliens L, Wee B, Higginson IJ, Verne J. Using routine data to improve palliative and end of life care. BMJ Support Palliat Care. 2016 Sep;6(3):257-62. doi: 10.1136/bmjspcare-2015-000994. Epub 2016 Feb 28. Link
Davies JM, Sleeman KE, Ramsenthaler C, Prentice W, Maddocks M, Murtagh FE. The association between socioeconomic position and the symptoms and concerns of hospital inpatients seen by specialist palliative care: Analysis of routinely collected patient data. Palliat Med. 2022 Aug 10:2692163221115331. doi: 10.1177/02692163221115331. Epub ahead of print. PMID: 35949141.Link
Dawber R, Armour K, Ferry P, Mukherjee B, Carter C, and Meystre C. Comparison of informal caregiver and named nurse assessment of symptoms in elderly patients dying in hospital using the palliative outcome scale. BMJ Support Palliat Care. 2016 Jan 12. pii: bmjspcare-2015-000850. doi: 10.1136/bmjspcare-2015-000850. [Epub ahead of print] Link
de Nooijer K, Van Den Noortgate N, Pype P, Van den Block L, Pivodic L. Palliative care symptoms, concerns and well-being of older people with frailty and complex care needs upon hospital discharge: a cross-sectional study. BMC Palliat Care. 2022 Oct 6;21(1):173. doi: 10.1186/s12904-022-01065-5. PMID: 36203161; PMCID: PMC9540036. Link
Dhingra L, Dieckmann NF, Knotkova H, Chen J, Riggs A, Breuer B, Hiney B, Lee B, McCarthy M, Portenoy R. A High-Touch Model of Community-based Specialist Palliative Care: Latent Class Analysis Identifies Distinct Patient Subgroups. J Pain Symptom Manage. 2016 Aug;52(2):178-86. doi: 10.1016/j.jpainsymman.2016.04.001. Epub 2016 May 18. Link
Douglas H-R, Higginson I, Myers K, Normand C. Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial. Health and Social Care in the Community 2000; 8:336-344. Link
Dunckley M, Aspinal F, Addington-Hall JM, Hughes R, Higginson IJ. A research study to identify facilitators and barriers to outcome measure implementation. Int J Palliat Nurs 2005;11(5):218-25. Link
Edmonds P, Karlsen S, Khan S, Addington-Hall JM. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Pall Med 2001; 15:532-534. Link
Ellis-Smith C, Evans CJ, Murtagh FEM,Henson LA, Firth A, Higginson IJH and Daveson B; on behalf of BuildCARE Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliative Medicine DOI: 10.1177/0269216316675096 Link
Evans CJ, Benalia H, Preston NJ, Grande G, Gysels M, Short V, at al. The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop. J Pain and Symptom Manage 2013;46(6):925-37 doi: 10.1016/j.jpainsymman.2013.01.010. Epub 2013 Apr 28. Link
Fischbeck S, Maier BO, Reinholz U, Nehring C, Schwab R, Beutel ME, Weber M. Assessing somatic, psychosocial, and spiritual distress of patients with advanced cancer: development of the Advanced Cancer Patients' Distress Scale. Am J Hosp Palliat Care. 2013 Jun;30(4):339-46. doi: 10.1177/1049909112453640. Epub 2012 Jul 24. Link
Francis H, Bates MJ, Kalilani L. A Prospective Study Assessing Tumour Response, Survival, and Palliative Care Outcomes in Patients with HIV-Related Kaposi's Sarcoma at Queen Elizabeth Central Hospital, Blantyre, Malawi. AIDS Res Treat. 2012;2012:312564. doi: 10.1155/2012/312564. Epub 2012 Mar 11. Link
Gatter S, Brukamp K, Adolf D, Zerth J, Lorenzl S, Weck C. Neurological consultations via telemedicine for specialized outpatient palliative care (SOPC) at home and in hospice (TANNE project): study protocol for a randomized controlled trial. BMC Palliat Care. 2022 Dec 6;21(1):218. doi: 10.1186/s12904-022-01088-y. PMID: 36471382. Link
Gomes B, Calanzani N, Koffman J, Higginson IJ. Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study. BMC Med. 2015 Oct 9;13:235. doi: 10.1186/s12916-015-0466-5. Link
Gomes B, McCrone P, Hall S, Riley J, Koffman J, Higginson IJ. Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey. Support Care Cancer. 2013 Oct;21(10):2835-44. doi: 10.1007/s00520-013-1848-x. Epub 2013 Jun 8. Link
Goodwin D, Higginson IJ, Douglas H-R, Normand C, Myers K. A prospective comparative study evaluating the effectiveness of palliative day care in improving quality of life. Pall Med 2001; 15:526.
Goodwin DM, Higginson IJ, Myers K, Douglas HR, Normand CE. Effectiveness of palliative day care in improving pain, symptom control, and quality of life. J Pain Symptom Manage 2003 Mar;25(3):202-12. Link
Groh G, Vyhnalek B, Feddersen B, Führer M, Borasio GD. Effectiveness of a specialized outpatient palliative care service as experienced by patients and caregivers. J Palliat Med. 2013 Aug;16(8):848-56. doi: 10.1089/jpm.2012.0491. Epub 2013 May 16. Link
Gysels M, Higginson IJ. Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials. Supportive Care in Cancer 2007; 15:7-20. Link
Harding R, Higginson IJ, Donaldson N. The relationship between patient characteristics and carer psychological status in home palliative cancer care. Supp Care Cancer 2003;11:638-643. Link
Harding R, Defilippi K, Cameron D. What palliative care-related problems do patients with drug-resistant or drug-susceptible tuberculosis experience on admission to hospital? A cross-sectional self-report study. Palliat Med. 2016 Oct;30(9):862-8. doi: 10.1177/0269216316637240. Link
Harding R, Simms V, Alexander C, Collins K, Combo E, Memiah P, Patrick G, Sigalla G, Loy G. Can palliative care integrated within HIV outpatient settings improve pain and symptom control in a low-income country? A prospective, longitudinal, controlled intervention evaluation. AIDS Care. 2013;25(7):795-804. doi: 10.1080/09540121.2012.736608. Epub 2012 Oct 31. Link
Harding R, Simms V, Penfold S, Downing J, Namisango E, Powell RA, Mwangi-Powell F, Moreland S, Gikaara N, Atieno M, Higginson IJ. Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study. BMC Infect Dis 2014; 14(1): 613. Link
Harding R, Simms V, Penfold S, McCrone P, Moreland S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Fayers P, Curtis S, Higginson IJ. Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: Study protocol. BMC Public Health. 2010. 10:584. Link
Hearn J, Higginson IJ. Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review of the evidence. Palliative Medicine 1998; 12:317-332. Link
Hearn J, Higginson IJ. Outcome measures for advanced cancer patients: a review of current measures and the development of a national core measure. Palliative Medicine 1997; 11(1):71-72.
Hermann K, Engeser P, Szecsenyi J, Miksch A. Palliative patients cared for at home by PAMINO-trained and other GPs - health-related quality of life as measured by QLQ-C15-PAL and POS. BMC Palliat Care. 2012 Aug 21;11:13. doi: 10.1186/1472-684X-11-13. Link
Hermann K, Miksch A, Szecsenyi J, Engeser P. Versorgung von palliativpatienten in der hausarztpraxis - übereinstimmung der einschätzung der betreuung aus arzt- und patientensicht mithilfe der Palliative Care Outcome Scale (POS) [Palliative care in general practice – concordance of care assessment between General practitioners and patients on the Palliative Care Outcome Scale (POS)]. Z Palliativmed 2010;11:26-33. Link
Hermans K, Cohen J, Spruytte N, Van Audenhove C, Declercq A. Palliative care needs and symptoms of nursing home residents with and without dementia: A cross-sectional study. Geriatr Gerontol Int. 2016 Sep 16. doi: 10.1111/ggi.12903. [Epub ahead of print] Link
Hermans K, De Almeida Mello J, Spruytte N, Cohen J, Van Audenhove C, Declercq A. Does using the interRAI Palliative Care instrument reduce the needs and symptoms of nursing home residents receiving palliative care? Palliat Support Care. 2017 Apr 4:1-9. doi: 10.1017/S1478951517000153. [Epub ahead of print] Link
Hermans K, Spruytte N, Cohen J, van Audenhove C, Declercq A. Informed palliative care in nursing homes through the interRAI palliative care instrument: a study protocol based on the medical research council framework. BMC Geriatrics 2014, 14:132. Link
Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. The Lancet Respiratory Medicine 2014. Link
Higginson I, Campion-Smith C, Miller M, Thomas K, Wee B. The 'Which Tool' Guide: Preliminary review of tools to measure clinical effectiveness in palliative care. APM Clinical Governance Clinical Effectiveness Working Group. 2001.
Higginson IJ, Costantini M. Communication in end-of-life cancer care: a comparison of team assessments in three European countries. Journal of Clinical Oncology 2002;20:3674-3682. Link
Higginson IJ, Gao W, Saleem TZ, Chaudhuri KR, Burman R, McCrone P, Leigh PN. Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors. PLoS One. 2012;7(11):e46327. doi: 10.1371/journal.pone.0046327. Epub 2012 Nov 7. Link
Higginson IJ, Harding R. Outcome measurement. In: Addington-Hall J, Bruera E, HIGGINSON IJ, Payne S (Eds). Research Methods in Palliative Care Oxford: Oxford University Press. 2007; pp99-113.
Higginson IJ, Hart S, Koffman J, Selman L, Harding R. Needs assessment in palliative care: an appraisal of definitions and approaches used. Journal of Pain and Symptom Management 2007; 33:500-505. Link
Higginson IJ, Hearn J. A multicenter evaluation of cancer pain control by palliative care teams. J Pain Symptom Manage 1997 Jul;14(1):29-35. Link
Higginson IJ, Hart S, Silber E, Burman R, Edmonds P. Symptom prevalence and severity in people severely affected by Multiple Sclerosis. Journal of Palliative Care 2006;22:158-165. Link
HigginsonIJ, Normand C, Douglas H-R, Amesbury B, Donaldson N. What effect does palliative day care have on patient outcomes: a non-randomised comparison? Palliative Medicine 2006; 20:140-141.
Hirayama H, Satomi E, Kizawa Y, Miyazaki M, Tagami K, Sekine R, Suzuki K, Yotani N, Sugano K, Abo H, Sakashita A, Sato K, Nakagawa S, Nakazawa Y, Hamano J, Miyashita M. The effect of palliative care team intervention and symptom improvement using patient-reported outcomes: a multicenter prospective observational study. Support Care Cancer. 2023 Jul 3;31(7):439. doi: 10.1007/s00520-023-07912-2. PMID: 37395791. Link
Hodiamont F, Schatz C, Schildmann E, Syunyaeva Z, Hriskova K, Rémi C, Leidl R, Tänzler S, Bausewein C. The impact of the COVID-19 pandemic on processes, resource use and cost in palliative care. BMC Palliat Care. 2023 Apr 6;22(1):36. doi: 10.1186/s12904-023-01151-2. PMID: 37024852; PMCID: PMC10077306. Link
Horton R. Differences in assessment of symptoms and quality of life between patients with advanced cancer and their specialist palliative care nurses in a home care setting. Palliat Med 2002 Nov;16(6):488-94. Link
Johnston B, Patterson A, Bird L, Wilson E, Almack K, Mathews G, Seymour J. Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites. BMC Palliat Care. 2018 Feb 23;17(1):36. doi: 10.1186/s12904-018-0281-9. Link
Kendall M, Cowey E, Mead G, Barber M, McAlpine C, Stott DJ, Boyd K, Murray SA. Outcomes, experiences and palliative care in major stroke: a multicentre, mixed-method, longitudinal study. CMAJ. 2018 Mar 5;190(9):E238-E246. doi: 10.1503/cmaj.170604. Link
Koffman J, Higginson IJ. Accounts of symptom severity and control during advanced disease: a comparison of first generation black Caribbean and white patients with advanced disease. Pall Med 2001; 15:539-540.
Koffman J, Yorganci E, Yi D, Gao W, Murtagh F, Pickles A et al. (2019). Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle. Trials, 20(1), 506, doi:10.1186/s13063-019-3612-0. Link
Koh KC, Gupta ED, Poovaneswaran S, Then SL, Teo MJ, Gan TY, Thing JH. Concordance in the Assessment of Effectiveness of Palliative Care between Patients and Palliative Care Nurses in Malaysia: A Study with the Palliative Care Outcome Scale. Indian J Palliat Care. 2017 Jan-Mar;23(1):46-52. doi: 10.4103/0973-1075.197961. Link
Kose E, Nakagawa S, Niki K, Hashizume J, Kawazoe T, Suzuki N, Uchida M, Takase H. Pharmacist Interventions for Adverse Drug Reactions in Palliative Care: A Multicentre Pilot Study. Pharmazie. 2023 Aug 1;78(8):141-149. doi: 10.1691/ph.2023.3554. PMID: 37592417. Link
Krug R, Karus D, Selwyn PA, Raveis VH. Late-stage HIV/AIDS patients' and their familial caregivers' agreement on the palliative care outcome scale. J Pain Symptom Manage 2010 Jan;39(1):23-32. Link
Lerzynski GA, Allen A, Murray SA. An assessment of the ability of the Palliative Care Outcome Scale (POS) in different forms of care to measure palliative care outcomes in different settings. The use of a palliative care outcome measure in cancer patients attending St Columba's day hospice, Edinburgh, and in patients with lung cancer or heart failure in primary care. Z Palliativmedizin 2004;5(19):19-27. Link
Lowney AC, Myles HT, Bristowe K, Lowney EL, Shepherd K, Murphy M, O'Brien T, Casserly L, McQuillan R, Plant WD, Conlon PJ, Vinen C, Eustace JA, Murtagh FEM. Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland. J Pain Symptom Manage 2015 Dec;50(6):778-85. doi: 10.1016/j.jpainsymman.2015.07.010. Epub 2015 Aug 20. Link
Lowther K, Harding R, Ahmed A, Gikaara N, Ali Z, Kariuki H, Sherr L, Simms V, Selman L. Conducting experimental research in marginalised populations: clinical and methodological implications from a mixed-methods randomised controlled trial in Kenya. AIDS Care. 2016;28 Suppl 1:60-3. doi: 10.1080/09540121.2016.1146214. Epub 2016 Feb 26. Link
Lowther K, Selman L, Simms V, Gikaara N ,Ahmed A , Ali Z, Kariuki H, Sherr L, Higginson, IJ, Harding R. Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial. The Lancet HIV 2015. doi:10.1016/S2352-3018(15)00111-3. Link
Lowther K, Simms V, Selman L, Sherr L, Gwyther L, Kariuki H, Ahmed A, Ali Z, Jenkins R, Higginson IJ, Harding R. Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy. BMC Infect Dis. 2012 Nov 6;12:288. doi:10.1186/1471-2334-12-288. Link
Maddocks M, Byrne A, Johnson CD, Wilson RH, Fearon KC, Wilcock A. Physical activity level as an outcome measure for use in cancer cachexia trials: a feasibility study. Supportive care in cancer 2010; 18(12):1539-44. Link
Magnani C, Calvieri A, Giannarelli D, Espino M, Casale G. Peripherally inserted central catheter, midline, and "short" midline in palliative care: Patient-reported outcome measures to assess impact on quality of care. J Vasc Access. 2018 Dec 3:1129729818814732. doi: 10.1177/1129729818814732. [Epub ahead of print] Link
Malik FA, Gysels M, Higginson IJ. Living with breathlessness: a survey of caregivers of breathless patients with lung cancer or heart failure. Palliat Med. 2013 Jul;27(7):647-56. doi: 10.1177/0269216313488812. Epub 2013 May 23. Link
Marcucci FC, Cabrera MA, Perilla AB, Brun MM, de Barros EM, Martins VM, Rosenberg JP, Yates P. Identification and characteristics of patients with palliative care needs in Brazilian primary care. BMC Palliat Care. 2016 Jun 1;15(1):51. doi: 10.1186/s12904-016-0125-4. Link
Milne D, Aranda S, Jefford M, Schofield P. Development and validation of a measurement tool to assess perceptions of palliative care. Psychooncology. 2013 Apr;22(4):940-6. doi: 10.1002/pon.3071. Epub 2012 Mar 27. Link
Monnery D, Tredgett K, Hooper D, Barringer G, Munton A, Thomas M, Vijeratnam N, Godfrey N, Summerfield L, Hawkes K, Staley P, Holyhead K, Liu Y, Lockhart J, Bass S, Tavabie S, White N, Stewart E, Droney J, Minton O. Delivery Models and Health Economics of Supportive Care Services in England: A Multicentre Analysis. Clin Oncol (R Coll Radiol). 2023 Mar 11:S0936-6555(23)00086-9. doi: 10.1016/j.clon.2023.03.002. Epub ahead of print. PMID: 36997458. Link
Morton RL, Lioufas N, Dansie K, Palmer SC, Jose MD, Raj R, ... McDonald S. (2019). Use of Patient-Reported Outcome Measures and Patient-Reported Experience Measures in Renal units in Australia and New Zealand: a Cross-sectional Survey Study. Nephrology (Carlton). doi:10.1111/nep.13577 [Epub ahead of print] Link
Murphy E, Murtagh FEM, Carey I, Sheerin NS. Understanding symptoms in patients with advanced chronic kidney disease managed without dialysis: use of a short patient-completed assessment tool. Nephron Clinical Practice 2009;111:c74-c80. Link
Oriani A, Guo P, Gadoud A, Dunleavy L, Kane P, Murtagh FEM (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure?-a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Ann Palliat Med, doi:10.21037/apm.2019.08.10. Link
Paci E, Miccinesi G, Toscani F, Tamburini M, Brunelli C, Costatini M, Peruselli C, Di Giulio P, Gallucci M, Addington-Hall J, Higginson IJ. Quality of life assessment and outcome of palliative care. Journal of Pain and Symptom Management 2001;21:179-188. Link
Pelayo-Alvarez M, Perez-Hoyos S, Agra-Varela Y. Clinical effectiveness of online training in palliative care of primary care physicians. J Palliat Med. 2013 Oct;16(10):1188-96. doi: 10.1089/jpm.2013.0005. Epub 2013 Aug 29. Link
Pidgeon T, Johnson CE, Currow D, Yates P, Banfield M, Lester L, Allingham SF, Bird S, Eagar K. A survey of patients' experience of pain and other symptoms while receiving care from palliative care services. BMJ Support Palliat Care. 2015 Mar 5. doi: 10.1136/bmjspcare-2014-000748. Link
Ramsenthaler C, Osborne TR, Gao W, Siegert RJ, Edmonds PM, Schey SA, Higginson IJ. The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study. BMC Cancer 2016;16:427. Link
Rugno FC, Carlo MM. The Palliative Outcome Scale (POS) applied to clinical practice and research: an integrative review. Rev Lat Am Enfermagem. 2016 Aug 15;24:e2764. doi: 10.1590/1518-8345.0993.2764. [Article in English, Portuguese, Spanish] Link
Saleem TZ, Higginson IJ, Chaudhuri KR, Martin A, Burman R, Leigh PN. Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: a cross-sectional study of patients with Parkinson's disease and related neurological conditions. Palliat Med. 2013 Sep;27(8):722-31. Epub 2012 Dec 3. Link
Sandham MH, Hedgecock E, Hocaoglu M, Palmer C, Jarden RJ, Narayanan A, Siegert RJ. Strengthening Community End-of-Life Care through Implementing Measurement-Based Palliative Care. Int J Environ Res Public Health. 2022 Jun 24;19(13):7747. doi: 10.3390/ijerph19137747. PMID: 35805407; PMCID: PMC9265763.Link
Schildmann EK, Groeneveld EI, Denzel J, Brown A, Bernhardt F, Bailey K, Guo P, Ramsenthaler C, Lovell N, Higginson IJ, Bausewein C, Murtagh FE. Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale. Palliat Med. 2015 Sep 28. pii: 0269216315608348. [Epub ahead of print] Link
Selman LE, Beattie JM, Murtagh FEM, Higginson IJ. Palliative care: Based on neither diagnosis nor prognosis, but patient and family need. Commentary on Chattoo and Atkin. Social Science & Medicine 2009; 69:154-157. Link
Selman LE. 2012. How Do We Measure Spiritual Outcomes? Lessons from Exploring the Construct of Peace in an African Setting. Palliative Medicine. 26 (4): 402 (Abstract: INV14).
Sexton DJ, Lowney AC, O'Seaghdha CM, Murphy M, O'Brien T, Casserly LF et al. Do patient-reported measures of symptoms and health status predict mortality in hemodialysis? An assessment of POS-S Renal and EQ-5D. Hemodial Int. 2016 Oct;20(4):618-630. doi: 10.1111/hdi.12415. Epub 2016 May 15. Link
Sherry KL, McAuley G. Symptom prevalence and the use of systematic symptom assessment. Palliat Med. 2004 Jan;18(1):75-6. Link
Siegert RJ, Gao W, Walkey FH, Higginson IJ. Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale. J Pain Symptom Manage 2010 Jul;40(1):67-74. Link
Simon ST, Higginson IJ, Harding R, Daveson BA, Gysels M, Deliens L, Echteld MA, Radbruch L, Toscani F, Krzyzanowski DM, Costantini M, Downing J, Ferreira PL, Benalia A, Bausewein C, Prisma. Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care. Supportive Care in Cancer 2012; 20(7): 1573-8. Link
Slater A, Freeman E. Patients' views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 2004 Jul;10(7):343-51. Link
Solari A, Giordano A, Grasso MG, Confalonieri P, Patti F, Lugaresi A, Palmisano L, Amadeo R, Martino G, Ponzio M, Casale G, Borreani C, Causarano R, Veronese S, Zaratin P, Battaglia MA; PeNSAMI project. Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial. Trials. 2015 Apr 23;16(1):184 Link
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