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POS Publications by Year

To assist users who wish to see new publications, the current year is ordered as "last-added" first. Other years are alphabetical by author.


Burner-Fritsch I, Kolmhuber S, Hodiamont F, Bausewein C, Hriskova K. Implementing ePROM in specialist palliative home care: the professionals' perspective - a mixed-methods study. Palliat Care Soc Pract. 2023 Aug 6;17:26323524231186827. doi: 10.1177/26323524231186827. PMID: 37560175; PMCID: PMC10408331. Link
Runacres F, Mathers S, Lee SC, Hearn R, Gregory S, Bear N, Aoun S. Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs. Palliat Med. 2023 Aug 8:2692163231191545. doi: 10.1177/02692163231191545. Epub ahead of print. PMID: 37553906. Link
Spichiger F, Volken T, Larkin P, Meichtry AA, Koppitz A. Inter-rating reliability of the Swiss easy-read integrated palliative care outcome scale for people with dementia. PLoS One. 2023 Aug 2;18(8):e0286557. doi: 10.1371/journal.pone.0286557. PMID: 37531385; PMCID: PMC10395940. Link
Kose E, Nakagawa S, Niki K, Hashizume J, Kawazoe T, Suzuki N, Uchida M, Takase H. Pharmacist Interventions for Adverse Drug Reactions in Palliative Care: A Multicentre Pilot Study. Pharmazie. 2023 Aug 1;78(8):141-149. doi: 10.1691/ph.2023.3554. PMID: 37592417. Link
Thind AK, Levy S, Wellsted D, Willicombe M, Brown EA. Frailty and the psychosocial components of the edmonton frail scale are most associated with patient experience in older kidney transplant candidates - a secondary analysis within the kidney transplantation in older people (KTOP) study. Front Nephrol. 2023 Jan 17;2:1058765. doi: 10.3389/fneph.2022.1058765. PMID: 37675015; PMCID: PMC10479555. Link
Takamizawa S, Ishiki H, Oyamada S, Takeda Y, Kiuchi D, Amano K, Matsuda Y, Yokomichi N, Kohara H, Suzuki K, Satomi E, Mori M. Psychological symptom burden associated with malignant wounds: Secondary analysis of a prospective cohort study. Palliat Support Care. 2023 Aug 1:1-8. doi: 10.1017/S1478951523000536. Epub ahead of print. PMID: 37525610. Link
Hirayama H, Satomi E, Kizawa Y, Miyazaki M, Tagami K, Sekine R, Suzuki K, Yotani N, Sugano K, Abo H, Sakashita A, Sato K, Nakagawa S, Nakazawa Y, Hamano J, Miyashita M. The effect of palliative care team intervention and symptom improvement using patient-reported outcomes: a multicenter prospective observational study. Support Care Cancer. 2023 Jul 3;31(7):439. doi: 10.1007/s00520-023-07912-2. PMID: 37395791. Link
Vieira da Silva SN, Baptista P, Fonseca Silva I, Freire E, Pessegueiro Miranda H. Palliative Care in Advanced Liver Disease: Similar or Different Palliative Care Needs in Patients with a Prospect of Transplantation? Prospective Study from a Portuguese University Hospital and Transplantation Center. GE Port J Gastroenterol. 2023 Jun 8;30(3):204-212. doi: 10.1159/000522172. PMID: 37387715; PMCID: PMC10305251. Link
Liu J, Purtell L, Bonner A. Kidney supportive care for working age adults with chronic kidney disease: A profile of characteristics and symptom burden. Nephron. 2023 Jul 10. doi: 10.1159/000531872. Online ahead of print. PMID: 37429259 Link
Ishii Y, Ito N, Matsumura Y, Aoyama M, Kohara I, Murai K, Takeuchi K, Yokoyama T, Miyashita M, Miyashita M. Validity and reliability of the Integrated Palliative Care Outcome Scale for non-cancer patients. Geriatr Gerontol Int. 2023 May 28. doi: 10.1111/ggi.14603. Epub ahead of print. PMID: 37246235. Link
Braulke F, Para S, Alt-Epping B, Tewes M, Bäumer M, Haberland B, Mayer-Steinacker R, Hopprich A, de Wit M, Grabe M, Bender-Säbelkampf S, Weßling C, Aulmann C, Gerlach C, Regincos P, Fischer F, Haarmann S, Huys T, Drygas S, Rambau A, Kiani A, Schnabel A, Buhl C, Seipke S, Hiemer S, Polata S, Meßmann M, Hansmeier A, Anastasiadou L, Letsch A, Wecht D, Hellberg-Naegele M, Krug U, Wedding U, van Oorschot B. Systematic symptom screening in patients with advanced cancer treated in certified oncology centers: results of the prospective multicenter German KeSBa project. J Cancer Res Clin Oncol. 2023 May 5. doi: 10.1007/s00432-023-04818-8. Epub ahead of print. PMID: 37145199. Link
Schuler T, King C, Matsveru T, Back M, Clark K, Chin D, Lilian R, Gallego B, Coiera E, Currow DC. Wearable-Triggered Ecological Momentary Assessments Are Feasible in People With Advanced Cancer and Their Family Caregivers: Feasibility Study from an Outpatient Palliative Care Clinic at a Cancer Center. J Palliat Med. 2023 May 3. doi: 10.1089/jpm.2022.0535. Epub ahead of print. PMID: 37134212. Link
Hodiamont F, Schatz C, Schildmann E, Syunyaeva Z, Hriskova K, Rémi C, Leidl R, Tänzler S, Bausewein C. The impact of the COVID-19 pandemic on processes, resource use and cost in palliative care. BMC Palliat Care. 2023 Apr 6;22(1):36. doi: 10.1186/s12904-023-01151-2. PMID: 37024852; PMCID: PMC10077306. Link
Monnery D, Tredgett K, Hooper D, Barringer G, Munton A, Thomas M, Vijeratnam N, Godfrey N, Summerfield L, Hawkes K, Staley P, Holyhead K, Liu Y, Lockhart J, Bass S, Tavabie S, White N, Stewart E, Droney J, Minton O. Delivery Models and Health Economics of Supportive Care Services in England: A Multicentre Analysis. Clin Oncol (R Coll Radiol). 2023 Mar 11:S0936-6555(23)00086-9. doi: 10.1016/j.clon.2023.03.002. Epub ahead of print. PMID: 36997458. Link
Dillen K, Goereci Y, Dunkl V, Müller A, Fink GR, Voltz R, Hocaoglu M, Warnke C, Golla H. Cultural adaptation of the Integrated Palliative care Outcome Scale for neurological symptoms. Palliat Support Care. 2023 Apr 11:1-10. doi: 10.1017/S1478951523000238. Epub ahead of print. PMID: 37039454. Link
Walsh M, Bowen E, Vaughan C, Kiely F. Heart failure symptom burden in outpatient cardiology: observational cohort study. BMJ Support Palliat Care. 2023 Apr 19:spcare-2023-004167. doi: 10.1136/spcare-2023-004167. Epub ahead of print. PMID: 37076262. Link
Mori M, Yamaguchi T, Suzuki K, Matsuda Y, Matsunuma R, Watanabe H, Ikari T, Matsumoto Y, Imai K, Yokomichi N, Miwa S, Yamauchi T, Okamoto S, Inoue S, Inoue A, Hui D, Morita T, Satomi E; Japanese Dyspnea Relief Investigators. Do types of opioids matter for terminal cancer dyspnea? A preliminary multicenter cohort study. J Pain Symptom Manage. 2023 Apr 18:S0885-3924(23)00461-X. doi: 10.1016/j.jpainsymman.2023.04.009. Epub ahead of print. PMID: 37080479. Link
Bolzani A, Kupf S, Hodiamont F, Burner-Fritsch I, Bausewein C, Ramsenthaler C. Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial. Palliat Med. 2023 Mar 1:2692163231157871. doi: 10.1177/02692163231157871. Epub ahead of print. PMID: 36856258. Link
Hocaoglu MB, Murtagh FEM, Walshe C, Chambers RL, Maddocks M, Sleeman KE, Oluyase AO, Dunleavy L, Bradshaw A, Bajwah S, Fraser LK, Preston N, Higginson IJ; CovPall study team. Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV). Health Qual Life Outcomes. 2023 Mar 24;21(1):29. doi: 10.1186/s12955-023-02102-4. PMID: 36964550; PMCID: PMC10036974. Link
Berenguer-Martínez JM, Bernal-Celestino RJ, León-Martín AA, González-Moro MTR, Fernández-Calvo N, Arias-Del-Campo L, Civera-Miguel M. Quality of Life and Related Factors in Patients Undergoing Renal Replacement Therapy at the Hospital General Universitario de Ciudad Real: Cross Sectional Descriptive Observational Study. J Clin Med. 2023 Mar 14;12(6):2250. doi: 10.3390/jcm12062250. PMID: 36983250. Link
Chow AYM, Fordjour GA, Lui JNM, Chan IKN, Zhang AY, Chan CLW. The Physical and Psychosocial Outcomes of a Psychosocial Home-Based end-of-Life Care Intervention in Hong Kong. J Palliat Care. 2023 Feb 15:8258597231157346. doi: 10.1177/08258597231157346. Epub ahead of print. PMID: 36793228. Link
Bhardwaj T, Chambers RL, Watson H, Srividya, Higginson IJ, Hocaoglu MB. Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients. Palliat Med. 2023 Jan 31:2692163221147076. doi: 10.1177/02692163221147076. Link
DeGroot L, Pavlovic N, Perrin N, Gilotra NA, Dy SM, Davidson PM, Szanton SL, Saylor MA. Palliative Care Needs of Physically Frail Community-Dwelling Older Adults with Heart Failure. J Pain Symptom Manage. 2023 Jan 31:S0885-3924(23)00042-8. doi: 10.1016/j.jpainsymman.2023.01.016. Epub ahead of print. PMID: 36736499. Link
Solar S, Wieditz J, Lordick F, Mehnert-Theuerkauf A, Oechsle K, van Oorschot B, Thomas M, Asendorf T, Nauck F, Alt-Epping B. Screening versus multidimensional assessment of symptoms and psychosocial distress in cancer patients from the time of incurability. Front Oncol. 2023 Jan 26;13:1002499. doi: 10.3389/fonc.2023.1002499. PMID: 36776341; PMCID: PMC9908949. Link
Müller E, Mayer-Steinacker R, Gencer D, Keßler J, Alt-Epping B, Schönsteiner S, Jäger H, Couné B, Elster L, Keser M, Rauser J, Marquardt S, Becker G. Feasibility, use and benefits of patient-reported outcome measures in palliative care units: a multicentre observational study. BMC Palliat Care. 2023 Jan 14;22(1):6. doi: 10.1186/s12904-022-01123-y. PMID: 36641450; PMCID: PMC9839955. Link
Yamaguchi T, Matsunuma R, Matsuda Y, Tasaki J, Ikari T, Miwa S, Aiki S, Takagi Y, Kiuchi D, Suzuki K, Oyamada S, Ariyoshi K, Kihara K, Mori M. Systemic opioids for dyspnea in cancer patients: A real-world observational study. J Pain Symptom Manage. 2023 Jan 11:S0885-3924(23)00004-0. doi: 10.1016/j.jpainsymman.2022.12.146. Epub ahead of print. PMID: 36641006. Link


Davies JM, Sleeman KE, Ramsenthaler C, Prentice W, Maddocks M, Murtagh FE. The association between socioeconomic position and the symptoms and concerns of hospital inpatients seen by specialist palliative care: Analysis of routinely collected patient data. Palliat Med. 2022 Aug 10:2692163221115331. doi: 10.1177/02692163221115331. Epub ahead of print. PMID: 35949141. Link
de Nooijer K, Van Den Noortgate N, Pype P, Van den Block L, Pivodic L. Palliative care symptoms, concerns and well-being of older people with frailty and complex care needs upon hospital discharge: a cross-sectional study. BMC Palliat Care. 2022 Oct 6;21(1):173. doi: 10.1186/s12904-022-01065-5. PMID: 36203161; PMCID: PMC9540036. Link
Fei F, Siegert RJ, Zhang X, Gao W, Koffman J. Symptom clusters, associated factors and health-related quality of life in patients with chronic obstructive pulmonary disease: A structural equation modelling analysis. J Clin Nurs. 2022 Jan 30. doi: 10.1111/jocn.16234. Epub ahead of print. PMID: 35098602. Link
Gatter S, Brukamp K, Adolf D, Zerth J, Lorenzl S, Weck C. Neurological consultations via telemedicine for specialized outpatient palliative care (SOPC) at home and in hospice (TANNE project): study protocol for a randomized controlled trial. BMC Palliat Care. 2022 Dec 6;21(1):218. doi: 10.1186/s12904-022-01088-y. PMID: 36471382. Link
Ho YX, Morse RS, Lambden K, Mushi BP, Ngoma M, Mahuna H, Ngoma T, Miesfeldt S. How a Digital Case Management Platform Affects Community-Based Palliative Care of Sub-Saharan African Cancer Patients: Clinician-Users' Perspectives. Appl Clin Inform. 2022 Oct;13(5):1092-1099. doi: 10.1055/s-0042-1758223. Epub 2022 Nov 16. PMID: 36384234; PMCID: PMC9668489. Link
Isautier J, Webster AC, Lambert K, Shepherd HL, McCaffery K, Sud K, Kim J, Liu N, De La Mata N, Raihana S, Kelly PJ, Muscat DM; SUCCESS Study Group. Evaluation of the SUCCESS Health Literacy App for Australian Adults With Chronic Kidney Disease: Protocol for a Pragmatic Randomized Controlled Trial. JMIR Res Protoc. 2022 Aug 31;11(8):e39909. doi: 10.2196/39909. PMID: 36044265. Link
Kremenová Z, Vlcková K. Translation, cultural adaptation, and validation of the Integrated Palliative Outcome Scale-renal (IPOS-r) to Czech. BMC Palliat Care. 2022 Aug 30;21(1):152. doi: 10.1186/s12904-022-01044-w. PMID: 36038854; PMCID: PMC9425933. Link
Mendonça L, Antunes B, Rigor J, Martins-Mendes D, Monteiro-Soares M. Characterizing palliative care needs in people with or at risk of developing diabetic foot ulcers. Ther Adv Endocrinol Metab. 2022 Nov 14;13:20420188221136770. doi: 10.1177/20420188221136770. PMID: 36406834; PMCID: PMC9666889. Link
Namisango E, Bristowe K, Murtagh FE, Downing J, Powell RA, Atieno M, Abas M, Ali Z, Luyirika EB, Meiring M, Mwangi-Powell FN, Higginson IJ, Harding R. Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries. Palliat Med. 2022 Jun 2:2692163221099583. doi: 10.1177/02692163221099583. Epub ahead of print. PMID: 35656638. Link
Neo SH, Tan JY, Sim DK, Ng ES, Loh JKX, Yang GM, Murtagh FEM, Cheung YB. Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients. Palliat Med Rep. 2022 Nov 21;3(1):287-295. doi: 10.1089/pmr.2022.0029. PMID: 36479550; PMCID: PMC9712046. Link
Paiva BSR, Valentino TCO, Mingardi M, Oliveira MA, Franco JO, Salerno MC, Palocci H, Melo TC, Paiva CE. Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study. Sao Paulo Med J. 2022 Nov 21:S1516-31802022005028201. doi: 10.1590/1516-3180.2022.0085.R2.09082022. Epub ahead of print. PMID: 36417658. Link
Sandham M, Hedgecock EA, Siegert R, Narayanan A, Hocaoglu MB, Higginson I. Intelligent Palliative Care Based on Patient-Reported Outcome Measures. J Pain Symptom Manage. 2022 Jan 10:S0885-3924(21)00641-2. doi: 10.1016/j.jpainsymman.2021.11.008. Epub ahead of print. PMID: 35026384. Link
Sandham MH, Hedgecock E, Hocaoglu M, Palmer C, Jarden RJ, Narayanan A, Siegert RJ. Strengthening Community End-of-Life Care through Implementing Measurement-Based Palliative Care. Int J Environ Res Public Health. 2022 Jun 24;19(13):7747. doi: 10.3390/ijerph19137747. PMID: 35805407; PMCID: PMC9265763. Link
Seipp H, Haasenritter J, Hach M, Becker D, Schütze D, Engler J, Bösner S, Kuss K. State-wide implementation of patient-reported outcome measures (PROMs) in specialized outpatient palliative care teams (ELSAH): A mixed-methods evaluation and implications for their sustainable ?use. BMC Palliat Care. 2022 Dec 2;21(1):216. doi: 10.1186/s12904-022-01109-w. PMID: 36461081. Link
Sirati Nir M, Rassouli M, Ebadi A, Moosavi S, Pakseresht M, Hasan Shiri F, Souri H, Nasiri M, Karami M, Fereidouni A, Barasteh S. Psychometric Properties of the Persian Version of Palliative Care Outcome Scale (POS) in Adult Patients With Cancer. Front Psychol. 2022 Apr 28;13:858684. doi: 10.3389/fpsyg.2022.858684. PMID: 35602695; PMCID: PMC9122042. Link
Spichiger F, Keller Senn A, Volken T, Larkin P, Koppitz A. Integrated Palliative Outcome Scale for People with Dementia: easy language adaption and translation. J Patient Rep Outcomes. 2022 Feb 15;6(1):14. doi: 10.1186/s41687-022-00420-7. PMID: 35169943. Link
Taniguchi Y, Matsuda Y, Mori M, Ito M, Ikari T, Tokoro A, Aiki S, Hoshino S, Kiuchi D, Suzuki K, Igarashi Y, Odagiri T, Oya K, Kubo E, Yamaguchi T. Effectiveness and safety of opioids for dyspnea in patients with lung cancer: secondary analysis of multicenter prospective observational study. Transl Lung Cancer Res. 2022 Dec;11(12):2395-2402. doi: 10.21037/tlcr-22-512. PMID: 36636410; PMCID: PMC9830271. Link
Traldi Macedo L, Gomes Bastos Fernandes L, Palmeira HM, Souza Tanios B, Gaspar KC, Lima CSP. Assessment of symptom intensity and psychological well-being of patients with advanced cancer undergoing palliative care in a Brazilian public hospital: A cross-sectional study. Palliat Support Care. 2022 Aug 3:1-7. doi: 10.1017/S1478951522000967. Online ahead of print. PMID: 35920303 Link
Wang X, Shi Q, Mo Y, Liu J, Yuan Y. Palliative care needs and symptom burden in younger and older patients with end-stage renal disease undergoing maintenance hemodialysis: A cross-sectional study. Int J Nurs Sci. 2022 Oct 4;9(4):422-429. doi: 10.1016/j.ijnss.2022.09.015. PMID: 36285085; PMCID: PMC9587393. Link


Bolzani A, Ramsenthaler C, Hodiamont F, Burner-Fritsch IS, Bausewein C. Monitoring of Palliative Care Symptoms and Concerns in Specialized Palliative Home Care Using an Electronic Version of the Integrated Palliative care Outcome Scale (Palli-MONITOR): protocol for a mixed-methods study. BMJ Open. 2021 Jun 1;11(6):e042266. doi: 10.1136/bmjopen-2020-042266. PMID: 34078632; PMCID: PMC8173291. Link
Catania G, Zanini M, Signori A, Dal Molin A, Pilastri P, Bottino M, Cervetti C, Aleo G, Sasso L, Bagnasco A; INFO-QoL Collaborative Group. Providing a nurse-led complex nursing INtervention FOcused on quality of life assessment on advanced cancer patients: The INFO-QoL pilot trial. Eur J Oncol Nurs. 2021 Apr 18;52:101961. doi: 10.1016/j.ejon.2021.101961. Epub ahead of print. PMID: 33984605. Link
Chan HY, Chung CK, Tam SS, Chow RS. Community palliative care services on addressing physical and psychosocial needs in people with advanced illness: a prospective cohort study. BMC Palliat Care. 2021 Sep 15;20(1):143. doi: 10.1186/s12904-021-00840-0. PMID: 34525996; PMCID: PMC8442652. Link
Grill KB, Wang J, Cheng YI, Lyon ME. The Role of Religiousness and Spirituality in Health-related Quality of Life of Persons Living with HIV: A Latent Class Analysis. Psycholog Relig Spiritual. 2020 Nov;12(4):494-504. doi: 10.1037/rel0000301. Epub 2020 Jan 30. PMID: 33777311; PMCID: PMC7992907. Link
Gutiérrez-Sánchez D, Gómez-García R, Roselló MLM, Cuesta-Vargas AI. The Quality of Dying and Death of Advanced Cancer Patients in Palliative Care and Its Association With Place of Death and Quality of Care. J Hosp Palliat Nurs. 2021 Mar 4. doi: 10.1097/NJH.0000000000000752. Epub ahead of print. PMID: 33660672 Link
Hodiamont F, Hock H, Ellis-Smith C, Evans C, de Wolf-Linder S, Jünger S, Diehl-Schmid J, Burner-Fritsch I, Bausewein C. Culture in the spotlight-cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study. Palliat Med. 2021 Apr 16:2692163211004403. doi: 10.1177/02692163211004403. Epub ahead of print. PMID: 33863246. Link
Imai K, Morita T, Yokomichi N, Kawaguchi T, Kohara H, Yamaguchi T, Kikuchi A, Odagiri T, Watanabe YS, Kamura R, Maeda I, Kawashima N, Ito S, Baba M, Matsuda Y, Oya K, Kaneishi K, Hiratsuka Y, Naito AS, Mori M. Efficacy of proportional sedation and deep sedation defined by sedation protocols: A multicenter, prospective, observational comparative study: Protocol-based palliative sedation. J Pain Symptom Manage. 2021 Jun 9:S0885-3924(21)00381-X. doi: 10.1016/j.jpainsymman.2021.06.005. Epub ahead of print. PMID: 34118372. Link
Long VJE, Cheung YB, Qu D, Lim K, Lee G, Yee ACP, Guo P, Harding R, Yang GM. Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore. BMC Palliat Care 20, 40 (2021). Link
Mori M, Kawaguchi T, Imai K, Yokomichi N, Yamaguchi T, Suzuki K, Matsunuma R, Watanabe H, Maeda I, Matsumoto Y, Matsuda Y, Morita T; EASED Investigators. Visualizing how to use parenteral opioids for terminal cancer dyspnea: A pilot, multicenter, prospective, observational study. J Pain Symptom Manage. 2021 May 13:S0885-3924(21)00327-4. doi: 10.1016/j.jpainsymman.2021.05.001. Epub ahead of print. PMID: 33992759. Link
Roch C, Heckel M, van Oorschot B, Alt-Epping B, Tewes M. Screening for Palliative Care Needs: Pilot Data From German Comprehensive Cancer Centers. JCO Oncol Pract. 2021 Feb 11:OP2000698. doi: 10.1200/OP.20.00698. Epub ahead of print. PMID: 33571007 Link
Sakurai H, Miyashita M, Morita T, Naito AS, Miyamoto S, Otani H, Nozato J, Yokomichi N, Imai K, Oishi A, Kizawa Y, Matsushima E. Comparison between patient-reported and clinician-reported outcomes: Validation of the Japanese version of the Integrated Palliative care Outcome Scale for staff. Palliat Support Care. 2021 Mar 5:1-7. doi: 10.1017/S1478951521000018. Epub ahead of print. PMID: 33666153 Link
Szeliga M, Kotlinska-Lemieszek A, Jagielski P, Jaroszewski W, Kuzmicz I, Stachnik K, Feit J, Deskur-Smielecka E, Gradalski T. Psychometric validation and cross-cultural adaptation of the Integrated Palliative care Outcome Scale in Polish (IPOS-Pol). Palliat Support Care. 2021 Sep 28:1-7. doi: 10.1017/S1478951521001176. Epub ahead of print. PMID: 34579798. Link
Yapa HE, Purtell L, Chambers S, Bonner A. Alterations in symptoms and health-related quality of life as kidney function deteriorates: A cross-sectional study. J Clin Nurs. 2021 Mar 3. doi: 10.1111/jocn.15738. Epub ahead of print. PMID: 33656217 Link


Antunes B, Ferreira PL. Validation and cultural adaptation of the Integrated Palliative care Outcome Scale (IPOS) for the Portuguese population. BMC Palliat Care. 2020 Nov 24;19(1):178. PMID: 33234116. Link
Antunes B, Rodrigues PP, Higginson IJ, Ferreira PL (2020). Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale–a multi-centre study. BMC Palliative Care, 19, 1-9. Link
Coym A, Ullrich A, Hackspiel LK et al. Systematic symptom and problem assessment at admission to the palliative care ward – perspectives and prognostic impacts. BMC Palliat Care 19, 75 (2020). Link
Fettes L, Bone A, Etkind S, Ashford S, Higginson IJ, Maddocks M. Disability in basic activities of daily living is associated with symptom burden in older people with advanced cancer or chronic obstructive pulmonary disease: A secondary data analysis, Journal of Pain and Symptom Management (2020) Link
Gerlach C, Taylor K, Ferner M, Munder M, Weber M, Ramsenthaler C (2020). Challenges in the cultural adaptation of the German Myeloma Patient Outcome Scale (MyPOS): an outcome measure to support routine symptom assessment in myeloma care. BMC cancer, 20(1), 245. Link
Hocaoglu MB, Hepgul N, Tunnard I, Meltem E, Efe H, Ataoglu B, Baybar YL, Kinacigil M, Elsharairi H, Higginson IJ. Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale. Health Qual Life Outcomes. 2020 Sep 22;18(1):312. doi: 10.1186/s12955-020-01535-5. PMID: 32962717. Link
Kocatepe V, Kayikçi EE, Saygili Ü, Yildirim D, Can G, Örnek G (2020). The Palliative Care Outcome Scale: Turkish Validity and Reliability Study. Asia-Pacific journal of oncology nursing, 7(2), 196–202. Link
Nixon AC, Bampouras TM, Gooch HJ, et al. The EX-FRAIL CKD trial: a study protocol for a pilot randomised controlled trial of a home-based EXercise programme for pre-frail and FRAIL, older adults with Chronic Kidney Disease. BMJ Open. 2020;10(6):e035344. Published 2020 Jun 22. Link
Puente-Fernández D, Campos-Calderón CP, -Burgos AAE, Hueso-Montoro C, Roldán-López CB, Montoya-Juárez R. Palliative Care Symptoms, Outcomes, and Interventions for Chronic Advanced Patients in Spanish Nursing Homes with and without Dementia. Int J Environ Res Public Health. 2020;17(5):1465. Published 2020 Feb 25. Link
Roch C, Palzer J, Zetzl T, Störk S, Frantz S, van Oorschot B (2020). Utility of the integrated palliative care outcome scale (IPOS): a cross-sectional study in hospitalised patients with heart failure. European Journal of Cardiovascular Nursing. Link
Vogt A, Stiel S, Heckel M, Goebel S, Mai SS, Seifert A, Gerlach C, Ostgathe C, Weber M. Assessment of the quality of end-of-life care: translation and validation of the German version of the "Care of the Dying Evaluation" (CODE-GER) - a questionnaire for bereaved relatives. Health Qual Life Outcomes. 2020 Sep 22;18(1):311. doi: 10.1186/s12955-020-01473-2. PMID: 32962706. Link
Vlckova K, Hoschlova E, Chroustova E et al. Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis. BMC Palliat Care 19, 39 (2020). Link


Gonella S, Sperlinga R, Sciannameo V, Dimonte V, Campagna S (2019). Characteristics of Breakthrough Pain and Its Impact on Quality of Life in Terminally Ill Cancer Patients. Integr Cancer Ther, 18, 1534735419859095. doi:10.1177/1534735419859095 Link
Hogberg C, Alvariza A, Beck I (2019). Patients' experiences of using the Integrated Palliative care Outcome Scale for a person-centered care: A qualitative study in the specialized palliative home-care context. Nurs Inq, e12297. doi:10.1111/nin.12297 Link
Kinley J, Ellis-Smith C, Hurt M, McIvor K, Evans CJ (2019). A collaborative approach in dementia care to improve clinical effectiveness and priorities for research through audit. 25, 588-595. Link
Koffman J, Yorganci E, Yi D, Gao W, Murtagh F, Pickles A et al. (2019). Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle. Trials, 20(1), 506, doi:10.1186/s13063-019-3612-0. Link
Lind S, Wallin L, Furst CJ, Beck I. (2019). The integrated palliative care outcome scale for patients with palliative care needs: Factors related to and experiences of the use in acute care settings. Palliat Support Care, 1-8. doi:10.1017/s1478951518001104 [Epub ahead of print] Link
Morton RL, Lioufas N, Dansie K, Palmer SC, Jose MD, Raj R, ... McDonald S. (2019). Use of Patient-Reported Outcome Measures and Patient-Reported Experience Measures in Renal units in Australia and New Zealand: a Cross-sectional Survey Study. Nephrology (Carlton). doi:10.1111/nep.13577 [Epub ahead of print] Link
Moskovitch JT, Mount PF, Davies MRP. (2019). Changes in Symptom Burden in Dialysis Patients Assessed Using a Symptom-Reporting Questionnaire in Clinic. J Palliat Care, 825859719827315. doi:10.1177/0825859719827315. [Epub ahead of print] Link
Murtagh FE, Ramsenthaler C, Firth A, Groeneveld EI, Lovell N, Simon ST, Denzel J, Guo P, Bernhardt F, Schildmann E, van Oorschot B, Hodiamont F, Streitwieser S, Higginson IJ, Bausewein C (2019). A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliat Med, 269216319854264. doi:10.1177/0269216319854264 Link
Oriani A, Guo P, Gadoud A, Dunleavy L, Kane P, Murtagh FEM (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure?-a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Ann Palliat Med, doi:10.21037/apm.2019.08.10. Link
Ostgathe C, Wendt KN, Heckel M, Kurkowski S, Klein C, Krause SW, Fuchs FS, Bayer CM, Stiel S (2019). Identifying the need for specialized palliative care in adult cancer patients - development and validation of a screening procedure based on proxy assessment by physicians and filter questions. BMC Cancer, 19(1), 646. doi:10.1186/s12885-019-5809-8 Link
Ramsenthaler C, Gao W, Siegert RJ, Edmonds PM, Schey SA, Higginson IJ (2019). Symptoms and anxiety predict declining health-related quality of life in multiple myeloma: A prospective, multi-centre longitudinal study. Palliat Med, 33(5), 541-551. doi:10.1177/0269216319833588 Link
Sakurai H, Miyashita M, Imai K, Miyamoto S, Otani H, Oishi A, Kizawa Y, Matsushima E. Validation of the Integrated Palliative care Outcome Scale (IPOS)-Japanese version. Japanese Journal of Clinical Oncology. 2019 Jan 22. doi: 10.1093/jjco/hyy203. [Epub ahead of print] Link
Scherer JS, Harwood K, Frydman JL, Moriyama D, Brody AA, Modersitzki F, Blaum CS, Chodosh J (2019). A Descriptive Analysis of an Ambulatory Kidney Palliative Care Program. J Palliat Med. doi:10.1089/jpm.2018.0647 Link
Siouta N, Heylen A, Aertgeerts B, Clement P, Van Cleemput J, Janssens W, Menten J. (2019). Early integrated palliative care in chronic heart failure and chronic obstructive pulmonary disease: protocol of a feasibility before-after intervention study. Pilot Feasibility Stud, 5, 31. doi:10.1186/s40814-019-0420-y. eCollection 2019. Link
Sterie AC, Bernard M (2019). Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale. BMC Palliat Care, 18(1), 38. doi:10.1186/s12904-019-0422-9 Link
Sterie AC, Borasio GD, Bernard M, French IPOS Consortium. Validation of the French Version of the Integrated Palliative care Outcome Scale (IPOS). J Pain Symptom Manage. 2019. doi: 10.1016/j.jpainsymman.2019.07.012 Link
van der Willik EM, Meuleman Y, Prantl K, van Rijn G, Bos WJW, van Ittersum FJ et al. (2019). Patient-reported outcome measures: selection of a valid questionnaire for routine symptom assessment in patients with advanced chronic kidney disease – a four-phase mixed methods study. BMC Nephrology, 20(1), 344, doi:10.1186/s12882-019-1521-9. Link
Wilson R, Hepgul N, Saha RA, Higginson IJ, Gao W (2019). Symptom dimensions in people affected by long-term neurological conditions: a factor analysis of a patient-centred palliative care outcome symptom scale. Sci Rep, 9(1), 4972. doi:10.1038/s41598-019-41370-3. Link


Bausewein C, Schildmann E, Rosenbruch J, Haberland B, Tänzler S, Ramsenthaler C. Starting from scratch: implementing outcome measurement in clinical practice. Ann Palliat Med. 2018 Jul 9. pii: apm.2018.06.08. doi: 10.21037/apm.2018.06.08. [Epub ahead of print] Link
Ellis-Smith C, Higginson IJ, Daveson BA, Henson LA, Evans CJ; BuildCARE. How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem. PLoS One. 2018 Jul 11;13(7):e0200240. doi: 10.1371/journal.pone.0200240. eCollection 2018. Link
Guo P, Gao W, Higginson IJ, Harding R. Implementing Outcome Measures in Palliative Care. J Palliat Med. 2018 Apr;21(4):414. doi: 10.1089/jpm.2017.0674. Link
Johnston B, Patterson A, Bird L, Wilson E, Almack K, Mathews G, Seymour J. Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites. BMC Palliat Care. 2018 Feb 23;17(1):36. doi: 10.1186/s12904-018-0281-9. Link
Kane PM, Ellis-Smith CI, Daveson BA, Ryan K, Mahon NG, McAdam B, McQuillan R, Tracey C, Howley C, O'Gara G, Raleigh C, Higginson IJ, Murtagh FE, Koffman J; BuildCARE. Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study. Palliat Med. 2018 Jan;32(1):143-155. doi: 10.1177/0269216317738161. Epub 2017 Nov 20. Link
Kendall M, Cowey E, Mead G, Barber M, McAlpine C, Stott DJ, Boyd K, Murray SA. Outcomes, experiences and palliative care in major stroke: a multicentre, mixed-method, longitudinal study. CMAJ. 2018 Mar 5;190(9):E238-E246. doi: 10.1503/cmaj.170604. Link
Lind S, Sandberg J, Brytting T, Fürst CJ, Wallin L. Implementation of the integrated palliative care outcome scale in acute care settings - a feasibility study. Palliat Support Care. 2018 Jan 21:1-8. doi: 10.1017/S1478951517001158. [Epub ahead of print] Link
Magnani C, Calvieri A, Giannarelli D, Espino M, Casale G. Peripherally inserted central catheter, midline, and "short" midline in palliative care: Patient-reported outcome measures to assess impact on quality of care. J Vasc Access. 2018 Dec 3:1129729818814732. doi: 10.1177/1129729818814732. [Epub ahead of print] Link
Monnery D, Benson S, Griffiths A, Cadwallader C, Hampton-Matthews J, Coackley A, Cooper M, Watson A. Multi-professional-delivered enhanced supportive care improves quality of life for patients with incurable cancer. Int J Palliat Nurs. 2018 Oct 2;24(10):510-514. doi: 10.12968/ijpn.2018.24.10.510. Link
Nicholson C, Davies JM, George R, Smith B, Pace V, Harris L, Ross J, Noble J, Hansford P, Murtagh FEM. What are the main palliative care symptoms and concerns of older people with multimorbidity?-a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data. Ann Palliat Med. 2018 Jul 18. pii: apm.2018.06.07. doi: 10.21037/apm.2018.06.07. [Epub ahead of print] Link
Palat G, Stenlander C, Jacob J, Sinha S, Rapelli V, Wiebe T, Brun E, Segerlantz M. Specialized Palliative Care and the Quality of Life for Hospitalized Cancer Patients at a Low-Resource Hospital in India. Indian J Palliat Care. 2018 Jul-Sep;24(3):289-299. doi: 10.4103/IJPC.IJPC_95_18. Link
Pukrittayakamee P, Sapinum L, Suwan P, Harding R. Validity, reliability and responsiveness of the Thai Palliative Care Outcome Scale staff and patient versions among cancer patients. J Pain Symptom Manage. 2018 Jun 6. pii: S0885-3924(18)30292-6. doi:10.1016/j.jpainsymman.2018.05.025. [Epub ahead of print] Link
Purtell L, Sowa PM, Berquier I, Scuderi C, Douglas C, Taylor B, Kramer K, Hoy W, Healy H, Bonner A. The Kidney Supportive Care programme: characteristics of patients referred to a new model of care. BMJ Support Palliat Care. 2018 Dec 4; pii: bmjspcare-2018-001630. doi: 10.1136/bmjspcare-2018-001630. [Epub ahead of print] Link
Raj R, Ahuja K, Frandsen M, Murtagh FEM, Jose M.Validation of the IPOS-Renal Symptom Survey in Advanced Kidney Disease: A Cross-sectional Study. J Pain Symptom Manage. 2018 Aug;56(2):281-287. doi: 10.1016/j.jpainsymman.2018.04.006. Epub 2018 May 2. Link
Sandham MH, Medvedev O, Hedgecock E, Higginson IJ, Siegert RJ. A Rasch Analysis of the Integrated Palliative Care Outcome Scale (IPOS). J Pain Symptom Manage. 2018 Nov 26; pii: S0885-3924(18)31088-1. doi: 10.1016/j.jpainsymman.2018.11.019. [Epub ahead of print] Link
Seibl-Leven M, von Reeken C, Goldbrunner R, Grau S, Ruge MI, Galldiks N, Dunkl V, Kocher M, Voltz R, Golla H. Clinical routine assessment of palliative care symptoms and concerns and caregiver burden in glioblastoma patients: an explorative field study. J Neurooncol. 2018 Feb 20. doi: 10.1007/s11060-018-2800-1. [Epub ahead of print] Link
Veronese S, Rabitti E, Costantini M, Valle A, Higginson I. Translation and cognitive testing of the Italian Integrated Palliative Outcome Scale (IPOS) among patients and healthcare professionals. PLoS One. 2019;14(1):e0208536. PMID: 30601810 [PubMed - in process] Link


Antunes B, Ferreira PL. Integrated palliative care outcome scale: Protocol Validation for the Portuguese population. Revista Cuidados Paliativos 2017. Vol 4-N.º1; 65-102; julho 2017.
Beck I, Olsson Möller U, Malmström M, Klarare A, Samuelsson H, Lundh Hagelin C, Rasmussen B, Fürst CJ. Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff. BMC Palliat Care. 2017 Sep 11;16(1):49. doi: 10.1186/s12904-017-0232-x. Link
Conrad R, Mücke M, Marinova M, Burghardt A, Stieber C, Cuhls H, Radbruch L. Measurement of Quality of Life in Palliative Care: Evidence for Criterion-Oriented Validity of a Single-Item Approach. J Palliat Med. 2017 Jan 5. doi: 10.1089/jpm.2016.0218. [Epub ahead of print] Link
Davies JM, Osborne TR, Edmonds PM, Schey SA, Devereux S, Higginson IJ, Ramsenthaler C. The Myeloma Patient Outcome Scale is the first quality of life tool developed for clinical use and validated in patients with follicular lymphoma. Eur J Haematol. 2017 May;98(5):508-516. doi: 10.1111/ejh.12864. Epub 2017 Mar 9. Link
Dzingina MD, McCrone P, Higginson IJ. Does the EQ-5D capture the concerns measured by the Palliative care Outcome Scale? Mapping the Palliative care Outcome Scale onto the EQ-5D using statistical methods. Palliat Med. 2017 Jun;10(3):353-365. doi: 10.1007/s40271-017-0224-1. Link
Dzingina M, Higginson IJ, McCrone P, Murtagh FE. Development of a Patient-Reported Palliative Care-Specific Health Classification System: The POS-E. Patient. 2017 Mar 7. [Epub ahead of print] Link
Ellis-Smith C, Evans CJ, Murtagh FE, Henson LA, Firth AM, Higginson IJ, Daveson BA. Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliat Med. 2017 Jul;31(7):651-660. doi: 10.1177/0269216316675096. Epub 2016 Oct 25. Link
Gutiérrez Sánchez D, Leiva-Santos JP, Cuesta-Vargas AI. Symptom Burden Clustering in Chronic Kidney Disease Stage 5. Clin Nurs Res. 2017 Nov 1:1054773817740671. doi: 10.1177/1054773817740671. [Epub ahead of print] Link
Hermans K, De Almeida Mello J, Spruytte N, Cohen J, Van Audenhove C, Declercq A. Does using the interRAI Palliative Care instrument reduce the needs and symptoms of nursing home residents receiving palliative care? Palliat Support Care. 2017 Apr 4:1-9. doi: 10.1017/S1478951517000153. [Epub ahead of print] Link
Kane PM, Daveson BA, Ryan K, Ellis-Smith CI, Mahon NG, McAdam B, McQuilllan R, Tracey C, Howley C, O'Gara G, Raleigh C, Higginson IJ, Koffman J, Murtagh FEM; BuildCARE. Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure. BMJ Support Palliat Care. 2017 Sep 1. pii: bmjspcare-2017-001355. doi: 10.1136/bmjspcare-2017-001355. [Epub ahead of print] Link
Koh KC, Gupta ED, Poovaneswaran S, Then SL, Teo MJ, Gan TY, Thing JH. Concordance in the Assessment of Effectiveness of Palliative Care between Patients and Palliative Care Nurses in Malaysia: A Study with the Palliative Care Outcome Scale. Indian J Palliat Care. 2017 Jan-Mar;23(1):46-52. doi: 10.4103/0973-1075.197961. Link
Ramsenthaler C, Gao W, Siegert RJ, Schey SA, Edmonds PM, Higginson IJ. Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods. Qual Life Res. 2017 Jul 27. doi: 10.1007/s11136-017-1660-z. [Epub ahead of print] Link
Solari A, Giordano A, Patti F, Grasso MG, Confalonieri P, Palmisano L, Ponzio M, Borreani C, Rosato R, Veronese S, Zaratin P, Battaglia MA; PeNSAMI Project. Randomized controlled trial of a home-based palliative approach for people with severe multiple sclerosis. Mult Scler. 2017 Apr 1:1352458517704078. doi:10.1177/1352458517704078. [Epub ahead of print] Link
Tavares AP, Paparelli C, Kishimoto CS, Cortizo SA, Ebina K, Braz MS, Mazutti SR, Arruda MJ, Antunes B. Implementing a patient-centred outcome measure in daily routine in a specialist palliative care inpatient hospital unit: An observational study. Palliat Med. 2017 Mar;31(3):275-282. doi: 10.1177/0269216316655349. Epub 2016 Jul 11. Link
Voruganti T, Grunfeld E, Jamieson T, Kurahashi AM, Lokuge B, Krzyzanowska MK, Mamdani M, Moineddin R, Husain A. My Team of Care Study: A Pilot Randomized Controlled Trial of a Web-Based Communication Tool for Collaborative Care in Patients With Advanced Cancer. J Med Internet Res. 2017 Jul 18;19(7):e219. doi: 10.2196/jmir.7421. Link


Bausewein C, Daveson BA, Currow DC, Downing J, Deliens L, Radbruch L, Defilippi K, Lopes Ferreira P, Costantini M, Harding R, Higginson IJ. EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement. Palliat Med. 2016 Jan;30(1):6-22. doi:10.1177/0269216315589898. Epub 2015 Jun 11. Link
Bone AE, Gao W, Gomes B, Sleeman KE, Maddocks M, Wright J, Yi D, Higginson IJ, Evans CJ. Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population-Based Mortality Follow-Back Survey. J Am Geriatr Soc. 2016. doi: 10.1111/jgs.14442 Link
Calanzani N, Higginson IJ, Koffman J, Gomes B. Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care. PLoS One. 2016;11(1):e0146134. Link
Chua CK, Wu JT, Wong YY, Qu L, Tan YY, Neo PS, Pang GS. Caregiving and Its Resulting Effects-The Care Study to Evaluate the Effects of Caregiving on Caregivers of Patients with Advanced Cancer in Singapore. Cancers (Basel). 2016 Nov 15;8(11). pii: E105. Link
Costantini M, Rabitti E, Beccaro M, Fusco F, Peruselli C, La Ciura P, Valle A, Suriani C, Berardi MA, Valenti D, Mosso F, Morino P, Zaninetta G, Tubere G, Piazza M, Sofia M, Di Leo S, Higginson IJ. Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: a multicenter study of advanced cancer patients. BMC Palliative Care 2016 Feb 26;15(1):23. doi: 10.1186/s12904-016-0095-6. Link
Davies JM, Gao W, Sleeman KE, Lindsey K, Murtagh FE, Teno JM, Deliens L, Wee B, Higginson IJ, Verne J. Using routine data to improve palliative and end of life care. BMJ Support Palliat Care. 2016 Sep;6(3):257-62. doi: 10.1136/bmjspcare-2015-000994. Epub 2016 Feb 28. Link
Dawber R, Armour K, Ferry P, Mukherjee B, Carter C, and Meystre C. Comparison of informal caregiver and named nurse assessment of symptoms in elderly patients dying in hospital using the palliative outcome scale. BMJ Support Palliat Care. 2016 Jan 12. pii: bmjspcare-2015-000850. doi: 10.1136/bmjspcare-2015-000850. [Epub ahead of print] Link
Dhingra L, Dieckmann NF, Knotkova H, Chen J, Riggs A, Breuer B, Hiney B, Lee B, McCarthy M, Portenoy R. A High-Touch Model of Community-based Specialist Palliative Care: Latent Class Analysis Identifies Distinct Patient Subgroups. J Pain Symptom Manage. 2016 Aug;52(2):178-86. doi: 10.1016/j.jpainsymman.2016.04.001. Epub 2016 May 18. Link
Ellis-Smith C, Evans CJ, Bone AE, Henson LA, Dzingina M, Kane PM, Higginson IJ, Daveson BA, on behalf of BuildCARE. Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review. BMC Medicine 2016 Feb 26;14(1):38. doi: 10.1186/s12916-016-0582-x. Link
Erez G, Selman L, Murtagh FEM. Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36 Qual Life Res. 2016 25: 2799. doi:10.1007/s11136-016-1313-7 Link
Gao W, Crosby V, Wilcock A, Burman R, Silber E, Hepgul N, Chaudhuri R, Higginson IJ (2016) Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions. PLoS ONE 11(10): e0165379. doi: 10.1371/journal.pone.0165379 Link
Giordanoa A, Ciminob V, Campanellac A, Moroned G, Fuscod, Farinottia M et al. Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis. Journal of the Neurological Sciences, Vol.366, 15 July 2016, Pages 139–145. Link
Giovannetti AM, Pietrolongo E, Giordano A, Cimino V, Campanella A, Morone G, et al. Individualized quality of life of severely affected multiple sclerosis patients: practicability and value in comparison with standard inventories. Qual Life Res. 2016 Nov;25(11):2755-2763. Epub 2016 Apr 28. Link
Gutiérrez-Sánchez D, Leiva-Santos JP, Sánchez-Hernández R, Hernández-Marrero D, Cuesta-Vargas A. Spanish modified version of the palliative care outcome scale-symptoms renal: cross-cultural adaptation and validation. BMC Nephrol. 2016 Nov 18;17(1):180. Link
Harding R, Defilippi K, Cameron D. What palliative care-related problems do patients with drug-resistant or drug-susceptible tuberculosis experience on admission to hospital? A cross-sectional self-report study. Palliat Med. 2016 Oct;30(9):862-8. doi: 10.1177/0269216316637240. Link
Hermans K, Cohen J, Spruytte N, Van Audenhove C, Declercq A. Palliative care needs and symptoms of nursing home residents with and without dementia: A cross-sectional study. Geriatr Gerontol Int. 2016 Sep 16. doi: 10.1111/ggi.12903. [Epub ahead of print] Link
Lowther K, Harding R, Ahmed A, Gikaara N, Ali Z, Kariuki H, Sherr L, Simms V, Selman L. Conducting experimental research in marginalised populations: clinical and methodological implications from a mixed-methods randomised controlled trial in Kenya. AIDS Care. 2016;28 Suppl 1:60-3. doi: 10.1080/09540121.2016.1146214. Epub 2016 Feb 26. Link
Marcucci FC, Cabrera MA, Perilla AB, Brun MM, de Barros EM, Martins VM, Rosenberg JP, Yates P. Identification and characteristics of patients with palliative care needs in Brazilian primary care. BMC Palliat Care. 2016 Jun 1;15(1):51. doi: 10.1186/s12904-016-0125-4. Link
Ramsenthaler C, Osborne TR, Gao W, Siegert RJ, Edmonds PM, Schey SA, Higginson IJ. The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study. BMC Cancer 2016;16:427. Link
Rugno FC, Carlo MM. The Palliative Outcome Scale (POS) applied to clinical practice and research: an integrative review. Rev Lat Am Enfermagem. 2016 Aug 15;24:e2764. doi: 10.1590/1518-8345.0993.2764. [Article in English, Portuguese, Spanish] Link
Schildmann EK, Groeneveld EI, Denzel J, Brown A, Bernhardt F, Bailey K, Guo P, Ramsenthaler C, Lovell N, Higginson IJ, Bausewein C, Murtagh FE. Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale. Palliat Med.2016;30(6):599-610. Link
Sexton DJ, Lowney AC, O'Seaghdha CM, Murphy M, O'Brien T, Casserly LF et al. Do patient-reported measures of symptoms and health status predict mortality in hemodialysis? An assessment of POS-S Renal and EQ-5D. Hemodial Int. 2016 Oct;20(4):618-630. doi: 10.1111/hdi.12415. Epub 2016 May 15. Link
Strupp J, Voltz R, and Golla H. Opening locked doors: Integrating a palliative care approach into the management of patients with severe multiple sclerosis. Multiple Sclerosis Journal 2016, Vol. 22(1) 13 –18 DOI: 10.1177/ 1352458515608262. Link


Al Bulushi A, Critchley K. Evaluation of Quality of Life Instruments in a Palliative Care Context: An Integrative Literature Review. Middle East Journal of Nursing Volume 9 Issue 3 2015. Link
Antunes B, Murtagh F, Bausewein C, Harding R, Higginson IJ; EURO IMPACT. Screening for Depression in Advanced Disease: Psychometric Properties, Sensitivity and Specificity of Two Items of the Palliative care Outcome Scale (POS). J Pain Symptom Manage. 2015 Feb;49(2):277-88. doi: 10.1016/j.jpainsymman.2014.06.014. Link
Bajwah S, Ross JR, Wells AU, Mohammed K, Oyebode C, Birring SS, Patel AS, Koffman J, Higginson IJ, Riley J . Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention. Thorax 2015 Sep;70(9):830-9. doi: 10.1136/thoraxjnl-2014-206583. Epub 2015 Jun 23. Link
Bristowe K, Horsley HL, Shepherd K, Brown H, Carey I, Matthews B, O'Donoghue D, Vinen K, Murtagh FE. Thinking ahead--the need for early Advance Care Planning for people on haemodialysis: A qualitative interview study. Palliat Med. 2015 May;29(5):443-50. Link
Brown MA, Collett GK, Josland EA, Foote C, Li Q, Brennan FP. CKD in Elderly Patients Managed without Dialysis: Survival, Symptoms, and Quality of Life. Clin J Am Soc Nephrol. 2015 Feb 6;10(2):260-8. doi: 10.2215/CJN.03330414. Link
Cheikh Hassan HI, Brennan F, Collett G, Josland EA, Brown MA. Efficacy and safety of gabapentin for uremic pruritus and restless legs syndrome in conservatively managed patients with chronic kidney disease. J Pain Symptom Manage. 2015 Apr;49(4):782-9. doi: 10.1016/j.jpainsymman.2014.08.010. Link
Collins E, Witt J, Bausewein C, Daveson B, Higginson IJ, Murtagh FEM. A Systematic Review of the Use of the Palliative Care Outcome Scale (POS) and the Support Team Assessment Schedule (STAS) in Palliative Care. J Pain Symptom Manage 2015 Dec. doi: 10.1016/j.jpainsymman.2015.07.015. Link
Etkind SN, Daveson BA, Kwok W, Witt J, Bausewein C, Higginson IJ, Murtagh FEM. Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review. J Pain Symptom Manage. 2015 Mar;49(3):611-24. Link
Gomes B, Calanzani N, Koffman J, Higginson IJ. Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study. BMC Med. 2015 Oct 9;13:235. doi: 10.1186/s12916-015-0466-5. Link
Heckel M, Bussmann S, Stiel S, Weber M, Ostgathe C. Validation of the German Version of the Quality of Dying and Death Questionnaire for Informal Caregivers (QoDD-D-ANg). J Pain Symptom Manage. 2015 Jun 12. pii: S0885-3924(15)00253-5. doi: 10.1016/j.jpainsymman.2015.03.020. Link
Hudson P, Collins A, Bostanci A, Willenberg L, Stephanov N, Phillip J. Toward a systematic approach to assessment and care planning in palliative care: A practical review of clinical tools. Palliative and Supportive Care. 2015 doi:10.1017/S1478951515000565. Link
Locker LS, Lübbe AS. Quality of life in palliative care: An analysis of quality-of-life assessment. Progress in Palliative Care Volume: 23, Issue: 4, Aug 2015, pp. 208 – 219. Link
Lowney AC, Myles HT, Bristowe K, Lowney EL, Shepherd K, Murphy M, O'Brien T, Casserly L, McQuillan R, Plant WD, Conlon PJ, Vinen C, Eustace JA, Murtagh FEM. Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland. J Pain Symptom Manage 2015 Dec;50(6):778-85. doi: 10.1016/j.jpainsymman.2015.07.010. Epub 2015 Aug 20. Link
Lowther K, Selman L, Simms V, Gikaara N ,Ahmed A , Ali Z, Kariuki H, Sherr L, Higginson, IJ, Harding R. Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial. The Lancet HIV 2015. doi:10.1016/S2352-3018(15)00111-3. Link
Osborne TR, Ramsenthaler C, Schey SA, Siegert RJ, Edmonds PM, Higginson IJ. Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS). BMC Cancer. 2015 Apr 14;15:280. Link
Pidgeon T, Johnson CE, Currow D, Yates P, Banfield M, Lester L, Allingham SF, Bird S, Eagar K. A survey of patients' experience of pain and other symptoms while receiving care from palliative care services. BMJ Support Palliat Care. 2015 Mar 5. doi: 10.1136/bmjspcare-2014-000748. Link
Solari A, Giordano A, Grasso MG, Confalonieri P, Patti F, Lugaresi A, Palmisano L, Amadeo R, Martino G, Ponzio M, Casale G, Borreani C, Causarano R, Veronese S, Zaratin P, Battaglia MA; PeNSAMI project. Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial. Trials. 2015 Apr 23;16(1):184 Link
Subhradev S, Biji M S, Santam C, Sindhu N R, Satheesan B. Pairwise Comparison in Repeated Scores-Application in Palliative Cancer Patients. Journal of Data Science 2015, 795-806. Link
Van Vliet LM, Harding R, Bausewein C, Payne S, Higginson IJ; EUROIMPACT. How should we manage information needs, family anxiety, depression, and breathlessness for those affected by advanced disease: development of a Clinical Decision Support Tool using a Delphi design. BMC Med. 2015 Oct 13;13(1):263. Link
Verhofstede R, Smets T, Cohen J, Costantini M, Van Den Noortgate N, Deliens L. Improving end-of-life care in acute geriatric hospital wards using the Care Programme for the Last Days of Life: study protocol for a phase 3 cluster randomized controlled trial. BMC Geriatr. 2015 Feb 22;15:13. doi: 10.1186/s12877-015-0010-7. Link
Zimmerman S, Cohen L, van der Steen JT, Reed D, van Soest-Poortvliet MC, Hanson LC, Sloane PD. Measuring End-of-Life Care and Outcomes in Residential Care/Assisted Living and Nursing Homes. J Pain Symptom Manage. 2015 Apr;49(4):666-79. doi: 10.1016/j.jpainsymman.2014.08.009. Link


Antunes B, Harding R, Higginson IJ. Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers. Palliat Med. 2014;28(2):158-75. doi: 10.1177/0269216313491619. Epub 2013 Jun 25. Link
Blum D, Selman L, Agupio G, Mashao T, Mmoledi K, Moll T, Dinat N, Gwynther L, Sebuyira LM, Ikin B, Downing J, Kaasa S, Higginson IJ, Harding R. Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa. Health and Quality of Life Outcomes. 2014;12(1):118. Link
Brennan F, Collett G, Josland EA, Brown MA. The symptoms of patients with CKD stage 5 managed without dialysis. Progress in Palliative Care 2014. Link
Harding R, Albertyn R, Sherr L, Gwyther L. Pediatric palliative care in sub-saharan Africa: as systematic review of the evidence for care models, interventions and outcomes. J Pain Symptom Manage 2014 Mar;47(3):642-51. doi: 10.1016/j.jpainsymman.2013.04.010. Epub 2013 Aug 21. Link
Harding R, Powell RA, Namisango E, Merriman A, Gikaara N, Ali Z, Higginson IJ. Palliative care-related self-report problems among cancer patients in East Africa: a two-country study. Support Care Cancer. 2014 Dec;22(12):3185-92. doi: 10.1007/s00520-014-2301-5.Link
Harding R, Selman L, Ali Z, Powell RA, Namisango E, Mwangi-Powell F, et al. Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures. Health and Quality of Life Outcomes 2014;12(1):80 doi:10.1186/1477-7525-12-80. Link
Harding R, Simms V, Penfold S, Downing J, Namisango E, Powell RA, Mwangi-Powell F, Moreland S, Gikaara N, Atieno M, Higginson IJ. Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study. BMC Infect Dis 2014; 14(1): 613. Link
Hermans K, Spruytte N, Cohen J, van Audenhove C, Declercq A. Informed palliative care in nursing homes through the interRAI palliative care instrument: a study protocol based on the medical research council framework. BMC Geriatrics 2014, 14:132. Link
Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. The Lancet Respiratory Medicine 2014. Link
Lentsoane, Pearl P; Meyer, Hannelie; Schellack, Natalie "The use of outcome measures and pain scales in palliative care and clinical practice" S Afr Pharm J 2014;81(8):28-31.
Lentsoane, Pearl P; Meyer, Johanna C; Schellack, Natalie; Cameron, David A. "Challenges in the provision of palliative care at resource-limited South African hospice settings" African Journal for Physical, Health Education, Recreation and Dance. Supplement 1:2 (September) 2014, pp 420-432. Link
Mayland C and Bayly J. Clinical outcome measures within a specialist palliative care service (SPCS): Do they provide added value? BMJ Support Palliat Care 2014 doi:10.1136/bmjspcare-2014-000654.287 Link
Van der Eerden M, Csikos A, Busa C, Hughes S, Radbruch L, Menten J, Hasselaar J, Groot M. Experience of patients, family and professional caregivers with Integrated Palliative Care in Europe: protocol for an international, multicenter, prospective, mixed methods study. BMC Palliative Care 2014, 13:52. Link


Brennan F, Siva B, Crail S. Appropriate Assessment of Symptom Burden and Provision of Patient Information. Nephrology (Carlton). 2013 Apr 16. doi: 10.1111/nep.12075. [Epub ahead of print] Link
Defilippi K, Downing J. Feedback from African palliative care practitioners on the use of the APCA POS. Int J Palliat Nurs. 2013 Dec 20;19(12):577-81. Link
Evans CJ, Benalia H, Preston NJ, Grande G, Gysels M, Short V, at al. The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop. J Pain Symptom Manage 2013;46(6):925-37 doi: 10.1016/j.jpainsymman.2013.01.010. Epub 2013 Apr 28. Link
Gomes B, McCrone P, Hall S, Riley J, Koffman J, Higginson IJ. Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey. Support Care Cancer. 2013 Oct;21(10):2835-44. doi: 10.1007/s00520-013-1848-x. Epub 2013 Jun 8. Link
Groh G, Vyhnalek B, Feddersen B, Führer M, Borasio GD. Effectiveness of a specialized outpatient palliative care service as experienced by patients and caregivers. J Palliat Med. 2013 Aug;16(8):848-56. doi: 10.1089/jpm.2012.0491. Epub 2013 May 16. Link
Harding R, Selman L, Simms VM, Penfold S, Agupio G, Dinat N, Downing J, Gwyther L, Ikin B, Mashao T, Mmoledi K, Sebuyira LM, Moll T, Mwangi-Powell F, Namisango E, Powell RA, Walkey FH, Higginson IJ, Siegert RJ. How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS. J Pain Symptom Manage. 2013 Apr;45(4):746-52. doi: 10.1016/j.jpainsymman.2012.04.007. Epub 2012 Sep 24. Link
Harding R, Simms V, Alexander C, Collins K, Combo E, Memiah P, Patrick G, Sigalla G, Loy G. Can palliative care integrated within HIV outpatient settings improve pain and symptom control in a low-income country? A prospective, longitudinal, controlled intervention evaluation. AIDS Care. 2013;25(7):795-804. doi: 10.1080/09540121.2012.736608. Epub 2012 Oct 31. Link
Fischbeck S, Maier BO, Reinholz U, Nehring C, Schwab R, Beutel ME, Weber M. Assessing somatic, psychosocial, and spiritual distress of patients with advanced cancer: development of the Advanced Cancer Patients' Distress Scale. Am J Hosp Palliat Care. 2013 Jun;30(4):339-46. doi: 10.1177/1049909112453640. Epub 2012 Jul 24. Link
Lowther K, Simms V, Selman L, Sherr L, Gwyther L, Kariuki H, Ahmed A, Ali Z, Jenkins R, Higginson IJ, Harding R. Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy. BMC Infect Dis. 2012 Nov 6;12:288. doi:10.1186/1471-2334-12-288. Link
Malik FA, Gysels M, Higginson IJ. Living with breathlessness: a survey of caregivers of breathless patients with lung cancer or heart failure. Palliat Med. 2013 Jul;27(7):647-56. doi: 10.1177/0269216313488812. Epub 2013 May 23. Link
Milne D, Aranda S, Jefford M, Schofield P. Development and validation of a measurement tool to assess perceptions of palliative care. Psychooncology. 2013 Apr;22(4):940-6. doi: 10.1002/pon.3071. Epub 2012 Mar 27. Link
Pelayo-Alvarez M, Perez-Hoyos S, Agra-Varela Y. Clinical effectiveness of online training in palliative care of primary care physicians. J Palliat Med. 2013 Oct;16(10):1188-96. doi: 10.1089/jpm.2013.0005. Epub 2013 Aug 29. Link
Pelayo-Alvarez M, Perez-Hoyos S, Agra-Varela Y. Reliability and concurrent validity of the Palliative Outcome Scale, the Rotterdam Symptom Checklist, and the Brief Pain Inventory. J Palliat Med. 2013 Aug;16(8):867-74. doi: 10.1089/jpm.2012.0625. Epub 2013 Jun 28. Link
Saleem TZ, Higginson IJ, Chaudhuri KR, Martin A, Burman R, Leigh PN. Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: a cross-sectional study of patients with Parkinson's disease and related neurological conditions. Palliat Med. 2013 Sep;27(8):722-31. doi: 10.1177/0269216312465783. Epub 2012 Dec 3. Link
Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, Higginson IJ, Harding R. 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study. Health Qual Life Outcomes. 2013 Jun 10;11:94. doi: 10.1186/1477-7525-11-94. Link
Simms V, Gikaara N, Munene G, Atieno M, Kataike J, Nsubuga C, Banga G, Namisango E, Penfold S, Fayers P, Powell RA, Higginson IJ, Harding R. Multidimensional patient-reported problems within two weeks of HIV diagnosis in East Africa: a multicentre observational study. PLoS One. 2013;8(2):e57203. doi: 10.1371/journal.pone.0057203. Epub 2013 Feb 19. Link
Sleeman KE, Higginson IJ. A psychometric validation of two brief measures to assess palliative need in patients severely affected by multiple sclerosis. J Pain Symptom Manage. 2013 Sep;46(3):406-12. doi: 10.1016/j.jpainsymman.2012.08.007. Epub 2012 Nov 27. Link


Downing J, Ojing M, Powell RA, Ali Z, Marston J, Meiring M, Ssengooba J, Williams S, Mwangi-Powell F, Harding R. A palliative care outcome measure for children in sub-Saharan Africa: Early development findings. European Journal of Palliative Care 2012; 19(6):292-4.
Downing J, Simon ST, Mwangi-Powell FN, Benalia H, Daveson BA, Higginson IJ, Harding R, Bausewein C; Project PRISMA. Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa. BMC Palliat Care. 2012 Jan 6; 11:1. doi: 10.1186/1472-684X-11-1. Link
Francis H, Bates MJ, Kalilani L. A Prospective Study Assessing Tumour Response, Survival, and Palliative Care Outcomes in Patients with HIV-Related Kaposi's Sarcoma at Queen Elizabeth Central Hospital, Blantyre, Malawi. AIDS Res Treat. 2012;2012:312564. doi: 10.1155/2012/312564. Epub 2012 Mar 11. Link
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gao W, Gwyther L, Mashao T, Mmoledi K, Moll A, Mpanga Sebuyira L, Ikin B, Higginson I. Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa. BMJ Sexually Transmitted Infections. 2012. 88(8):607-11. Link
Hermann K, Engeser P, Szecsenyi J, Miksch A. Palliative patients cared for at home by PAMINO-trained and other GPs - health-related quality of life as measured by QLQ-C15-PAL and POS. BMC Palliat Care. 2012 Aug 21;11:13. doi: 10.1186/1472-684X-11-13. Link
Higginson IJ, Gao W, Saleem TZ, Chaudhuri KR, Burman R, McCrone P, Leigh PN. Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors. PLoS One. 2012;7(11):e46327. doi: 10.1371/journal.pone.0046327. Epub 2012 Nov 7. Link
Higginson IJ, Simon ST, Benalia H, Downing J, Daveson BA, Harding R, Bausewein C; PRISMA. Republished: which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey. Postgrad Med J. 2012 Aug;88(1042):451-7. Link
Lowther K, Simms V, Selman L, Sherr L, Gwyther L, Kariuki H, Ahmed A, Ali Z, Jenkins R, Higginson IJ, Harding R. Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy. BMC Infect Dis. 2012 Nov 6;12:288. doi:10.1186/1471-2334-12-288. Link
Fischbeck S, Maier BO, Reinholz U, Nehring C, Schwab R, Beutel ME, Weber M. Assessing somatic, psychosocial, and spiritual distress of patients with advanced cancer: development of the Advanced Cancer Patients' Distress Scale. Am J Hosp Palliat Care. 2013 Jun;30(4):339-46. doi: 10.1177/1049909112453640. Epub 2012 Jul 24. Link
Osborne TR, Ramsenthaler C, Siegert RJ, Edmonds PM, Schey SA, Higginson IJ. What issues matter most to people with multiple myeloma and how well are we measuring them? A systematic review of quality of life tools. Eur J Haematol 2012; 89(6):437-57. Link
Selman L, Harding R, Higginson IJ, Speck P, Agupio G, Dinat N, Downing J, Gwyther L, Gysels M, Ikin B, Mashao T, Mcdaniel B, Mmoledi K, Encompass Collaborative. 2012. 'Feeling at Peace' and 'Feeling that Life Is Worthwhile' - Items to Measure Spiritual Well-being in Sub-Saharan Africa. Palliative Medicine. 26(4):588 (Abstract: P307).
Selman L, Harding R, Higginson IJ, Agupio G, Dinat N, Downing J, Gwyther L, Gysels M, Ikin B, Mashao T, Mcdaniel B, Mmoledi K, Speck P. 2012. Encompass Collaborative Facilitators of and Barriers to Spiritual Well-being among Patients Receiving Palliative Care in Sub-Saharan Africa. Palliative Medicine. 26(4):404 (Abstract: OA27).
Selman L, Spiritual well-being and its assessment among patients receiving palliative care in South Africa and Uganda. Unpublished doctoral dissertation, King’s College London, 2012.
Selman LE. 2012. How Do We Measure Spiritual Outcomes? Lessons from Exploring the Construct of Peace in an African Setting. Palliative Medicine. 26 (4): 402 (Abstract: INV14).
Simon ST, Higginson IJ, Harding R, Daveson BA, Gysels M, Deliens L, Echteld MA, Radbruch L, Toscani F, Krzyzanowski DM, Costantini M, Downing J, Ferreira PL, Benalia A, Bausewein C, Prisma. Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care. Supportive Care in Cancer 2012; 20(7):1573-8. Link
Turner-Stokes L, Williams H, Sephton K, Rose H, Harris S, Thu A. Engaging the hearts and minds of clinicians in outcome measurement - the UK Rehabilitation Outcomes Collaborative approach. Disabil Rehabil 2012; 34(22):1871-9. Link


Antunes B, Ferreira PL, Harding R, Higginson IJ. Development of a Clinical Aid for Routine Assessment of Symptoms and Multidimensional Outcomes in Palliative Care: Development of the POS/POS-S Score Card. EAPC Scientific Congress, Lisbon, Portugal. European Journal of Palliative Care 2011; P555.
Bausewein C, Le Grice C, Simon ST, Higginson IJ, on behalf of PRISMA. The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS. Palliat Med. 2011 Jun;25(4):304-313. Epub 2011 Apr 4. Link
Bausewein C, Simon ST, Benalia H, Daveson B, Harding R,Higinson IJ, on behalf of PRISMA. Experiences with Patient Reported Outcome Measures in Palliative Care - Results from an International Online Survey. EAPC Scientific Congress, Lisbon, Portugal. European Journal of Palliative Care 2011; P551.
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R, Higginson IJ, Prisma. Implementing Patient Reported Outcome Measures (PROMs) in Palliative Care - Users' Cry for Help. Health and Quality of Life Outcomes 2011; 9(1):27. Link
Hall S, Kolliakou A, Petkova H, Froggatt K, Higginson IJ. Interventions for improving palliative care for older people living in nursing care homes. Cochrane Database Syst Rev 2011; (3):CD007132. Link
Harding R, Simon ST, Benalia H, Downing J, Daveson BA, Higginson IJ, Bausewein C; on behalf of PRISMA. The PRISMA Symposium 1: Outcome Tool Use. Disharmony in European Outcomes Research for Palliative and Advanced Disease Care: Too Many Tools in Practice. Journal of Pain & Symptom Management. 2011. 42(4):493-500. Link
Osborne TR, Ramsenthaler C, Siegert R, Edmonds P, Schey S, Higginson IJ. Health related quality of life instruments for use in people with multiple myeloma: a systematic literature review. Haematologica 2011; 96(s2):366.
Ramsenthaler C, Siegert RJ, Higginson IJ. A Checklist for Reporting Factor Analysis in Palliative Care Research. BMJ Supportive & Palliative Care A22 2011; 1(Suppl 1):A2–A25. Link


Bausewein C, Booth S, Gysels M, Kühnbach R, Haberland B, Higginson IJ. Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer. J Palliat Med 2010;13(9):1109-1118. Link
Buchanan D, Milroy R, Baker L, Thompson AM, Levack PA. Perceptions of anxiety in lung cancer patients and their support network. Support Care Cancer 2010;18:29–36. Link
Edmonds P, Hart S, GAO W, Vivat B, Burman R, Silber E, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler 2010 May;16(5):627-36. Link
Harding R, Selman L, Aguipo G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Panjatovic B, Higginson IJ. Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. Health Qual Life Outcomes 2010;8(10). Link
Harding R, Simms V, Penfold S, McCrone P, Moreland S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Fayers P, Curtis S, Higginson IJ. Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: Study protocol. BMC Public Health. 2010. 10:584. Link
Harding R. Monitoring patients’ status in advanced cancer. Why use a measure and how to choose one? EONS newsletter Autumn 2010:16-17. Link
Hermann K, Miksch A, Szecsenyi J, Engeser P. Versorgung von palliativpatienten in der hausarztpraxis - übereinstimmung der einschätzung der betreuung aus arzt- und patientensicht mithilfe der Palliative Care Outcome Scale (POS) [Palliative care in general practice – concordance of care assessment between General practitioners and patients on the Palliative Care Outcome Scale (POS)]. Z Palliativmed 2010;11:26-33. Link
Krug R, Karus D, Selwyn PA, Raveis VH. Late-stage HIV/AIDS patients' and their familial caregivers' agreement on the palliative care outcome scale. J Pain Symptom Manage 2010 Jan;39(1):23-32. Link
Maddocks M, Byrne A, Johnson CD, Wilson RH, Fearon KC, Wilcock A. Physical activity level as an outcome measure for use in cancer cachexia trials: a feasibility study. Supportive care in cancer 2010; 18(12):1539-44. Link
Selman L, Harding R. How can we improve outcomes for patients and families under palliative care? Implementing clinical audit for quality improvement in resource limited settings. Indian journal of palliative care 2010; 16(1):8-15. Link
Siegert RJ, Gao W, Walkey FH, Higginson IJ. Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale. J Pain Symptom Manage 2010 Jul;40(1):67-74. Link


Douglas C, Murtagh FEM, Chambers EJ, Howse M, Ellershaw J. Symptom management for the adult patient dying with advanced chronic kidney disease: A review of the literature and development of evidence-based guidelines by a United Kingdom Expert Consensus Group. Palliat Med 2009, 23:103-110. Link
Higginson IJ, McCrone P, Hart SR, Burman R, Silber E, Edmonds PM. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage. 2009 Dec;38(6):816-26. Link
Justo Roll I, Simms V, Harding R. Multidimensional problems among advanced cancer patients in Cuba: awareness of diagnosis is associated with better patient status. J Pain Symptom Manage 2009 Mar;37(3):325-30. Link
Marath M. Translation, Cultural Adaptation and Validation of the Palliative Outcome Scale in Malayalam. London: King’s College London, 2009.
Murphy E, Murtagh FEM, Carey I, Sheerin NS. Understanding symptoms in patients with advanced chronic kidney disease managed without dialysis: use of a short patient-completed assessment tool. Nephron Clinical Practice 2009;111:c74-c80. Link
Murtagh FEM. Improving care at the end of life for renal patients (Editorial). Journal of Renal Nursing 2009; 1(3):109.
Selman LE, Beattie JM, Murtagh FEM, Higginson IJ. Palliative care: Based on neither diagnosis nor prognosis, but patient and family need. Commentary on Chattoo and Atkin. Social Science & Medicine 2009; 69:154-157. Link
Steinmann D, Schafer C, van OB, Wypior HJ, Bruns F, Bolling T, et al. Effects of radiotherapy for brain metastases on quality of life (QoL). Prospective pilot study of the DEGRO QoL working party. Strahlenther Onkol 2009 Mar;185(3):190-7. Link


Bausewein C, Booth S, Higginson IJ. Measurement of dyspnoea in the clinical rather than the research setting. Current Opinion in Supportive and Palliative Care 2008; 2:95-99. Link
Eisenchlas JH, Harding R, Daud ML, Perez M, De Simone GG, Higginson IJ. Use of the palliative outcome scale in Argentina: a cross-cultural adaptation and validation study. J Pain Symptom Manage 2008 Feb;35(2):188-202. Link
Farquhar MC, Higginson IJ, Booth S. Repeated measurement of quality of life in palliative care research: the experience of using the SEIQoL-DW in a pilot Phase II RCT of a complex intervention for breathlessness. 7th Palliative Care Congress. Palliative Medicine 2008; 22:596.
Higginson IJ, Gao W. Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity. Health Qual Life Outcomes 2008;6:42. Link
Higginson IJ, Hart S, Burman R, Silber E, Saleem T, Edmonds P. Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up. BMC Palliat Care 2008;7:7. Link
Kaasa S, Loge JH, Fayers P, Caraceni A, Strasser F, Hjermstad MJ, Higginson I, Radbruch L, Haugen DF. Symptom assessment in palliative care: a need for international collaboration. Journal of Clinical Oncology 2008; 10:3867-3873. Link
Laila M, Rialle V, Nicolas L, Duguay C, Franco A. Videophones for the delivery of home healthcare in oncology. Stud Health Technol Inform 2008;136:39-44.Link
Lopes FP, Pinto BA. Medir qualidade de vida em cuidados paliativos [Measuring quality of life in palliative care]. Acta Med Port 2008 Mar;21(2):111-24. Link
Wei G, Higginson IJ. Agreement between terminal cancer patients and their caregivers reported palliative outcomes: the role of caregiving burden. 5th Research Forum of the EAPC. Palliative Medicine 2008; 22:401.


Downing J, Harding R, Powell R, Alexandra C, Cameron S, Connor S, Defilippi K, Garanganga E, Kikule E, Mwangi-Powell F. Use of the APCA African Palliative Outcome Scale (POS) improves nursing assessment of palliative care patients. European Journal of Palliative Care 2007:EAPC.
Gwyther L, Harding R, Selman L, Mashao T, Dinat N, Mpanga-Sebuyira L, Mmoledi K, Agupio G, Gillespie C, Panatovic B. Symptom prevalence and factors associated with burden indices among palliative care patients: a multicentre study in 2 Sub-Saharan African countries. European Journal of Palliative Care 2007:EAPC.
Gysels M, Higginson IJ. Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials. Supportive Care in Cancer 2007; 15:7-20. Link
Gysels M, Richardson A, Higginson IJ. Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review. Health Expectations 2007; 10:75-91. Link
Harding R, Dinat N, Mpanga Sebuyira L. Measuring and improving palliative care in South Africa: multiprofessional clinical perspectives on development and application of appropriate outcome tools. Progress in Palliative Care 2007; 15:55-59.
Harding R, Panatovic B, Agupio G, Gillespie C, Mashao T, Mmoledi K, Ndlovu P, Dinat N, Gwyther L, Mpanga-Seburia L. Measuring pain and symptoms in resource-poor settings: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa. European Journal of Palliative Care 2007:EAPC.
Higginson IJ, Harding R. Outcome measurement. In: Addington-Hall J, Bruera E, HIGGINSON IJ, Payne S (Eds). Research Methods in Palliative Care Oxford: Oxford University Press. 2007; pp99-113.
Higginson IJ, Hart S, Koffman J, Selman L, Harding R. Needs assessment in palliative care: an appraisal of definitions and approaches used. Journal of Pain and Symptom Management 2007; 33:500-505. Link
Powell RA, Downing J, Harding R, Mwangi-Powell F, Connor S. Development of the APCA African Palliative Outcome Scale. Journal of Pain and Symptom Management 2007; 33:229-232. Link
Rosemann T, Hermann K, Miksch A, Engeser P, Szecsenyi J. The PAMINO-project: evaluating a primary care-based educational program to improve the quality of life of palliative patients. BMC Palliat Care 2007;6:5. Link
Saleem T, Leigh N, Higginson IJ. Symptom prevalence amongst people affected by advanced and progressive neurological conditions – a systematic review. European Journal of Palliative Care 2007: EAPC. Link
Wade DT. Ethics of collecting and using healthcare data. British Medical Journal 2007 30;334(7608):1330-1. Link


Edmonds P, Burman R, Silber E, Hart S, Higginson IJ. Evaluation of a novel palliative care service for patients severely affected by multiple sclerosis. Palliative Medicine 2006;20:245.
Edmonds P, Burman R, Silber E, Hart S, Higginson IJ. Are there differences between those patients severely affected by multiple sclerosis included in and excluded from a randomised controlled trial of a new palliative care service? Palliative Medicine 2006;20:354.
Frame K, Outcomes of Palliative Care in Sub-Saharan Africa—Initial Steps in the Development of an Outcome Measure. London: King's College London, 2006.
Higginson IJ, Hart S, Silber E, Burman R, Edmonds P. Symptom prevalence and severity in people severely affected by Multiple Sclerosis. Journal of Palliative Care 2006; 22:158-165. Link
Higginson IJ, Normand C, Douglas H-R, Amesbury B, Donaldson N. What effect does palliative day care have on patient outcomes: a non-randomised comparison? Palliative Medicine 2006; 20:140-141.
Higginson IJ, Vivat B, Silber E, Saleem T, Burman R, Hart S, Edmonds P. Study protocol: delayed intervention randomised controlled trial within the Medical Research Council (MRC) Framework to assess the effectiveness of a new palliative care service. BMC Palliative Care 2006; 5:7. Link
Pappas G, Wolf RC, Morineau G, Harding R. Validity of measures of pain and symptoms in HIV/AIDS infected households in resources poor settings: results from the Dominican Republic and Cambodia. BMC Palliat Care 2006;5:3. Link
Saini T, Murtagh FEM, Dupont PJ, McKinnon PM, Hatfield P, Saunders Y. Comparative pilot study of symptoms and quality of life in cancer patients and patients with end stage renal disease. Palliative Medicine 2006; 20:631-636. Link


Bausewein C, Fegg M, Radbruch L, Nauck F, von MS, Borasio GD, et al. Validation and clinical application of the German version of the palliative care outcome scale. J Pain Symptom Manage 2005 Jul;30(1):51-62.Link
Brandt HE, Deliens L, van der Steen JT, Ooms ME, Ribbe MW, van der Wal G. The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale. Palliat Med 2005 Jun;19(4):334-42. Link
Dunckley M, Aspinal F, Addington-Hall JM, Hughes R, Higginson IJ. A research study to identify facilitators and barriers to outcome measure implementation. Int J Palliat Nurs 2005;11(5):218-25. Link
Higginson IJ. Audit in Palliative Care – does it work? European Journal of Palliative Care 2005:EAPC.
Higginson IJ, Edmonds P, Vivat B, Burman R, Silber E. Do people with MS have palliative care needs? European Journal of Palliative Care 2005: EAPC.
Morita T, Fujimoto K, Tei Y. Palliative care team: the first year audit in Japan. J Pain Symptom Manage 2005 May;29(5):458-65. Link
Morita T, Takigawa C, Onishi H, Tajima T, Tani K, Matsubara T, et al. Opioid rotation from morphine to fentanyl in delirious cancer patients: an open-label trial. J Pain Symptom Manage 2005 Jul;30(1):96-103. Link
Saleem T, Hughes R, Addington-Hall J. Assessing the cultural acceptability, sensitivity and appropriateness of translated versions of palliative care evaluation surveys in South Asian communities. The 5th Palliative Care Congress abstracts, Warwick, March 2005.
Slater A, Freeman E. Is the Palliative Care Outcome Scale useful to staff in a day hospice unit? Int J Palliat Nurs 2005 Jul;11(7):346-54. Link
Stevens AM, Gwilliam B, A'hern R, Broadley K, Hardy J. Experience in the use of the palliative care outcome scale. Support Care Cancer 2005 Dec;13(12):1027-34. Link
Wan Toh E, Palliative Care Outcome Scale (POS)-a Pilot Study in Dover Park Hospice: Is it Applicable in the Singapore Setting? King's College London 2005.


Aspinal F, Higginson IJ. Audit, outcomes and quality of life in palliative care. In: Sykes N, EDMONDS P, Wiles J. Management of Advanced Disease London: Arnold Publishers. 2004; pp27-47.
Burman R, Vivat B, Edmonds P, Silber E, Higginson IJ. Palliative care needs of people severely affected by multiple sclerosis (MS): views of healthcare professionals. Palliative Medicine 2004;18:163.
Harding R, Higginson IJ, Leam C, Donaldson N, Pearce A, George R, Robinson V, Taylor L. Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. J Pain Symptom Manage 2004;27:396-408. Link 
Higginson IJ. Clinical and organizational audit in palliative medicine. In: Oxford Textbook of Palliative Medicine. Eds: Doyle D, Hanks G, Cherny N, Calman K. Oxford: Oxford University Press. 2004; pp184-196.
Higginson IJ, Donaldson N. Relationship between three palliative care outcome scales. Health Qual Life Outcomes 2004;2:68. Link
Hughes R, Aspinal F, Addington-Hall JM, Dunckley M, Faull C, Higginson IJ. It just didn't work: the realities of quality assessment in the English health care context. Int J Nurs Stud 2004 Sep;41(7):705-12. Link
Hughes RA, Aspinal F, Higginson IJ, Addington-Hall JM, Dunckley M, Faull C, et al. Assessing palliative care outcomes for people with motor neurone disease living at home. Int J Palliat Nurs 2004 Sep;10(9):449-53. Link
Hughes RA, Sinha A, Aspinal F, Dunckley M, Addington-Hall J, Higginson IJ. What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study. Int J Health Care Qual Assur Inc Leadersh Health Serv 2004;17(1):47-52. Link
Lerzynski GA, Allen A, Murray SA. An assessment of the ability of the Palliative Care Outcome Scale (POS) in different forms of care to measure palliative care outcomes in different settings. The use of a palliative care outcome measure in cancer patients attending St Columba's day hospice, Edinburgh, and in patients with lung cancer or heart failure in primary care. Z Palliativmedizin 2004;5(19):19-27. Link
Saleem T, Hughes R, Addington-Hall J. Assessing cultural acceptability, sensitivity and appropriateness of translated versions of palliative care evaluations in south Asian communities. Palliative Medicine 2004; 18:152.
Serra-Prat M, Nabal M, Santacruz V, Picaza JM, Trelis J. Traducción, adaptación y validación de la Palliative Care Outcome Scale al españo [Validation of the Spanish version of the Palliative Care Outcome Scale]. Med Clin (Barc ) 2004 Oct 2;123(11):406-12. Link
Sherry KL, McAuley G. Symptom prevalence and the use of systematic symptom assessment. Palliat Med. 2004 Jan;18(1):75-6. Link
Slater A, Freeman E. Patients' views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 2004 Jul;10(7):343-51. Link
Vivat B, Edmonds P, Burman R, Silber E, Higginson IJ. Developing a palliative care and neurological service for people severely affected by multiple sclerosis (MS) in southeast London. Palliative Medicine 2004; 18:337.


Carr AJ, Higginson IJ. Are quality of life measures patient centred? In: Carr AJ, HIGGINSON IJ, Robinson PG (Eds). Quality of Life. London: BMJ Books 2003, pp19-30.
Corner J, Halliday D, Haviland J, Douglas HR, Bath P, Clark D, et al. Exploring nursing outcomes for patients with advanced cancer following intervention by Macmillan specialist palliative care nurses. J Adv Nurs 2003 Mar;41(6):561-74. Link
Costantini M, Higginson IJ, Boni L, Orengo MA, Garrone E, Henriquet F, Bruzzi P. Effect of a palliative home care team on hospital admissions among patients with advanced cancer. Palliative Medicine 2003; 17:315-321. Link
Dunckley M, Hughes R, Addington-Hall J, Higginson IJ. Language translation of outcome measurement tools: views of health professionals. International Journal of Palliative Nursing 2003; 9:49-55. Link
Goodwin DM, Higginson IJ, Myers K, Douglas HR, Normand CE. Effectiveness of palliative day care in improving pain, symptom control, and quality of life. J Pain Symptom Manage 2003 Mar;25(3):202-12. Link
Harding R, Higginson IJ, Donaldson N. The relationship between patient characteristics and carer psychological status in home palliative cancer care. Supportive Care in Cancer 2003;11:638-643. Link
Higginson IJ, Carr AJ. The clinical utility of quality of life measures. In: Carr AJ, HIGGINSON IJ, Robinson PG (Eds). Quality of Life. London: BMJ Books 2003, pp63-78.
Hughes R, Aspinal F, Addington-Hall J, Chidgey J, Drescher U, Dunckley M, et al. Professionals' views and experiences of using outcome measures in palliative care. Int J Palliat Nurs 2003 Jun;9(6):234-8. Link


Aspinal F, Hughes R, Higginson IJ, Chidgey J, Drescher U, Thompson M. A user's guide to the Palliative care Outcome Scale. London: Palliative Care and Policy Publications: 2002.
Cooper J, Hewison A. Implementing audit in palliative care: an action research approach. J Adv Nurs 2002 Aug;39(4):360-9. Link
Higginson IJ, Bruera E. Do we need palliative care audit in developing countries? Palliative Medicine 2002; 16:546-547. Link
Higginson IJ, Costantini M. Communication in end-of-life cancer care: a comparison of team assessments in three European countries. Journal of Clinical Oncology 2002; 20:3674-3682. Link
Horton R. Differences in assessment of symptoms and quality of life between patients with advanced cancer and their specialist palliative care nurses in a home care setting. Palliat Med 2002 Nov;16(6):488-94. Link
Stromgren AS, Groenvold M, Pedersen L, Olsen AK, Sjogren P. Symptomatology of cancer patients in palliative care: content validation of self-assessment questionnaires against medical records. Eur J Cancer 2002 Apr;38(6):788-94. Link


Edmonds P, Karlsen S, Khan S, Addington-Hall JM. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Pall Med 2001; 15:532-534. Link
Goodwin D, Higginson IJ, Douglas H-R, Normand C, Myers K. A prospective comparative study evaluating the effectiveness of palliative day care in improving quality of life. Pall Med 2001; 15:526.
Higginson I, Campion-Smith C, Miller M, Thomas K, Wee B. The 'Which Tool' Guide: Preliminary review of tools to measure clinical effectiveness in palliative care. APM Clinical Governance Clinical Effectiveness Working Group. 2001.
Higginson IJ, Carr A. Measuring quality of life: Using quality of life measures in the clinical setting. British Medical Journal 2001; 322:1297-1300. Link
Koffman J, Higginson IJ. Accounts of symptom severity and control during advanced disease: a comparison of first generation black Caribbean and white patients with advanced disease. Pall Med 2001; 15:539-540.
Paci E, Miccinesi G, Toscani F, Tamburini M, Brunelli C, Costatini M, Peruselli C, Di Giulio P, Gallucci M, Addington-Hall J, Higginson IJ. Quality of life assessment and outcome of palliative care. Journal of Pain and Symptom Management 2001; 21:179-188. Link


Chidgey JM, Higginson I, Monroe B. The use of the Palliative Care Outcome Scale (POS) in a specialist palliative care unit. Palliative Care Congress, University of Warwick, March 2000. Palliative Medicine 2000; 14:245-246.
Douglas H-R, Higginson I, Myers K, Normand C. Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial. Health and Social Care in the Community 2000; 8:336-344. Link
Edmonds P, Higginson IJ, Altmann D, Sen-Gupta G, McDonnell M. Is the presence of dyspnoea a risk factor for morbidity in cancer patients? Journal of Pain and Symptom Management 2000; 19:15-22. Link
Higginson IJ. Quality assurance and audit in palliative care. In: Chochinov HM, Breitbart W (Eds). Handbook of Psychiatry in Palliative Medicine. Oxford, New York: Oxford University Press Inc. 2000; 399-406.
Higginson IJ, Hearn J. Palliative Care Audit: Tools, Objectives and Models for Training in Assessment, Monitoring and Review. In: Portenoy RK, Bruera E (Eds). Topics in Palliative Care Vol 4. Oxford, New York: Oxford University Press, Inc 2000; 95-118.
Higginson IJ, Romer AL. Measuring quality of care in palliative care services. Journal of Palliative Medicine 2000; 3:229-236. Link


Edmonds P, Karlsen S, Addington-Hall J. Palliative care needs of hospital in-patients. Report to King's Healthcare. London: Department of Palliative Care and Policy, King’s College. 1999.
Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 1999 Dec;8(4):219-27. Link
Higginson IJ, Edmonds P. Services, costs and appropriate outcomes in end of life care. Editorial. Annals of Oncology 1999;10:135-136. Link
Peruselli C, Giulio P, Toscani F, Galluci M, Brunelli C, Costantini M, Tamburini M, Paci E, Miccinesi G, Addington-Hall JM, Higginson IJ. Home palliative care for terminal cancer patients: a survey on the final week of life. Palliative Medicine 1999;13:233-241. Link


Edmonds PM, Stuttaford JM, Penny J, Lynch AM, Chamberlain J. Do hospital palliative care teams improve symptom control? Use of modified STAS as an evaluation tool. Palliative Medicine 1998;12:345-351. Link
Hearn J, Higginson IJ. Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review of the evidence. Palliative Medicine 1998;12:317-332. Link
Hearn J, Higginson IJ. Improving outcomes in lung cancer: Research evidence NHS Executive 1998. Review team for: Communication, Multidisciplinary team, management of progressive disease. PROPOSAL 5: Communication; PROPOSAL 6: Multidisciplinary team.
Hearn J, Higginson IJ. The process of conducting a multi-centre study to validate a core outcome measure in palliative care settings. Journal of Pain and Symptom Hearn J, Higginson IJ. Validation of core outcome measure for palliative care – the palliative care outcome scale (POS). Palliative Medicine 1998:12;474 Management 1998;15(4):S10.
Higginson IJ. Can Professionals Improve Their Assessments? Editorial. Journal of Pain and Symptom Management 1998;15:149-150.
Higginson IJ. Clinical and organisational audit in palliative care. In Oxford Textbook of Palliative Medicine Second Edition. Edited by D Doyle, G W C Hanks, N MacDonald. Oxford: Oxford University Press 1998; 2(6):pp67-81.
Higginson IJ. Needs assessment and audit in palliative care. In: Handbook of Palliative Care. Eds: Faull C, Carter Y, and Woof R. Oxford: Blackwell Science Ltd 1998; pp44-54.
Rogers A, Addington-Hall J, Pound P. Investigating the palliative care needs of stroke patients on the acute stroke unit. Palliative Medicine 1998; 12:481


Chidgey J. Methodological and ethical issues in developing symptom distress scales for use in dying patients. Proceedings of the European Association for Palliative Care Conference, 1997.
Edmonds P, Stuttaford J, Penny J, Lynch AM, Chamberlain J. Use of modified STAS as an evaluation tool for a hospital palliative care team. Proceedings of the European Association for Palliative Care Conference, London. 1997; 43.
Fakhoury W, McCarthy M, Addington-Hall JM. The effects of the clinical characteristics of dying cancer patients on informal caregivers' satisfaction with palliative care. Palliative Medicine 1997;11:107-115. Link
Fakhoury WKH, McCarthy M, Addington-Hall J. Carers' health status: is it associated with their evaluation of the quality of palliative care? Scandinavian Journal of Social Medicine 1997:254 (4):296-301. Link
Field G B, Chamberlain C, Urch C, Stirling C, Meyer M, Higginson I. Evaluation of the Support Team Assessment Schedule for the In-patient Setting - and its Further Development. In: Proceedings of the IV Congress of the European Association for Palliative Care. Edit by Franco de Conno. Milan: European Association of Palliative Care 1997: 99-108.
Hearn J, Higginson IJ. Outcome measures in palliative care for advanced cancer patients: a review. Journal of Public Health Medicine 1997;19(2):193-199. Link
Hearn J, Higginson IJ. Outcome measures for advanced cancer patients: a review of current measures and the development of a national core measure. Palliative Medicine 1997;11(1):71-72.
Higginson IJ. Innovations in Assessment: Epidemiology and Assessment of Pain in Advanced Cancer. In: Proceedings of the 8th World Congress on Pain. Edited by S T Jenson, JA Turner and Z Wiesenfield-Hallin. Seattle: The International Association for the Study of Pain 1997; 49:707-716.
Higginson IJ, Hearn J. A multicenter evaluation of cancer pain control by palliative care teams. J Pain Symptom Manage 1997 Jul;14(1):29-35. Link


Fakhoury W, McCarthy M and Addington-Hall J. Determinants of informal caregivers' satisfaction with services for dying cancer patients. Social Science and Medicine 1996;42(5): 721-731. Link
Fakhoury WKH, McCarthy M, Addington-Hall JM. Which informal carers are most satisfied with services for dying cancer patients? European Journal of Public Health 1996; 6: 181-187. Link
Higginson IJ, Hearn J & Dunlop R. A core clinical audit system for patients with advanced cancer and their families: Palliative Care Core Audit (PCCA). Interim Report. KCW Health Commissioning Agency 1996.
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